reverse ileostomy

Posted by kelscourt @kelscourt, Jul 16 4:48pm

Does anyone else have a reverse ileostomy (pouch) after Crohn's/colitis surgery? I've had mine for 28 years. Wanting to know what type of diet you have, etc...

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Becky, Volunteer Mentor | @becsbuddy | Jul 16 5:44pm

@kelscourt Hello and welcome to Mayo Clinic Connect! I included two discussions from the Cancer Support Group that you might like:
https://connect.mayoclinic.org/discussion/ileostomy-reversal-coming-up-what-will-be-my-new-normal/
https://connect.mayoclinic.org/discussion/change-in-bp-and-iron-post-op-resection/
I’m also adding some members who have had reversals. I’m asking @nana120. @pavlina60 @lindaldotson if they would join the discussion.
What made the ileostomy a necessity? Was it cancer or an autoimmune disorder? What are your feelings about having this reversal done?

kelscourt | @kelscourt | Jul 18 8:57am

In reply to @becsbuddy "@kelscourt Hello and welcome to Mayo Clinic Connect! I included two discussions from the Cancer Support..." + (show)

I had my colon removed due to crohns/colitis. It was never confirmed which one it actually was. After diagnosis I had an ileostomy. 6 months later I had a reversal. I wish I would have never done that! Constant issues vs having an ileostomy and having a better quality of life. I would never recommend a reversal to anyone!

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