Retinal "ink blots" when awaking in a dimly lit room

Posted by ljmontgo @ljmontgo, Aug 2 9:08am

There are some region of my retinas that are less light sensitive than others and these appear as sort of "ink blots" when I first open my eyes in the morning in a dimly lit bedroom. They disappear after my eyes have been open for a bit. The affected regions can get both larger and smaller over a few days. When smaller, there is a central blot with smaller blots on the periphery. When larger the central blots merges with many of the other blots and a new blot may appear to the side of the original blots. This expansion and contraction of the affected areas has happened multiple times over the past two years and I have been trying to discern what is the cause. It doesn't seem to be dietary and I have been taking AREDS vitamins consistently. The blots got larger while I weas vacationing but gradually got smaller after I retuned home. I have macular degeneration but this variability seems to be not normally associated with macular degeneration as my ophthalmologist had never heard of it.

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Hi, I have a macular pucker, and when I close the other eye, the letters I see have what looks like an ink blot on them. But this is different from what you are experiencing.

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My retina doctor Bascom Palmer trained said that if visual symptoms occur in both eyes at once, they’re not likely caused by AMD. I had a different phenomenon (perfect circles), upon waking in each eye and he offered me a referral to a neuro-ophthalmologist. You might want to consider that route too — it could relate to optic nerve adaptation or circulation changes, not the retina itself.

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I also have inkblots in the morning and putting in my systane drops takes them away. I also have wavy lines looking out a window in the house or the car window and if I move my eyes to look directly at them they disappear.

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Profile picture for 56huxley @sjs1

My retina doctor Bascom Palmer trained said that if visual symptoms occur in both eyes at once, they’re not likely caused by AMD. I had a different phenomenon (perfect circles), upon waking in each eye and he offered me a referral to a neuro-ophthalmologist. You might want to consider that route too — it could relate to optic nerve adaptation or circulation changes, not the retina itself.

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Thanks, I'll look into that.

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I get those some mornings; same shape each time with the right eye a bit larger gray rectangle than the left roundish one. I was diagnosed with dry AMD last year and haven't noted any vision changes yet (AREDS2 don't seem to help). I also have rather wimpy optic nerves, but the start this year suggests AMD.

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Profile picture for kayabbott @kayabbott

I get those some mornings; same shape each time with the right eye a bit larger gray rectangle than the left roundish one. I was diagnosed with dry AMD last year and haven't noted any vision changes yet (AREDS2 don't seem to help). I also have rather wimpy optic nerves, but the start this year suggests AMD.

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My shapes have stayed consistency except for getting a bit larger and smaller over the course of a few days. They disappear after my eyes stay open for a second or two. I’ve been diagnosed with dry AMD in left eye and wet AMD in right eye. I’ve been getting injections in right.

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Profile picture for ljmontgo @ljmontgo

My shapes have stayed consistency except for getting a bit larger and smaller over the course of a few days. They disappear after my eyes stay open for a second or two. I’ve been diagnosed with dry AMD in left eye and wet AMD in right eye. I’ve been getting injections in right.

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@ljmontgo I suspect my are the optic nerve blind spot at the back of our eyes, mainly because my husband sees the same thing and he has not AMD. I have a friend that has been getting injections for wet AMD (which he started out with) for 5 years, and his vision is still good enough for driving. He does use ai audio books that than recorded ones, because he said he can pause, ask ai a question about plot and other, and then continue. AI is apparently good for things other than just search engines.

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Profile picture for kayabbott @kayabbott

I get those some mornings; same shape each time with the right eye a bit larger gray rectangle than the left roundish one. I was diagnosed with dry AMD last year and haven't noted any vision changes yet (AREDS2 don't seem to help). I also have rather wimpy optic nerves, but the start this year suggests AMD.

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I think AREDS 2 are intended to slow down the progression of AMD, not improve it, unfortunately.

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Profile picture for kaye46 @kaye46

I think AREDS 2 are intended to slow down the progression of AMD, not improve it, unfortunately.

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@kaye46 True. So far I am asymptomatic and hopefully stays that way for years. A lot depends on progression, including the type of dry AMD. Hard drusen are less likely to cause geographic symptoms than soft drusen (perhaps more likely to merge with other soft drusen?). Tis a learning experience.

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Profile picture for kayabbott @kayabbott

@kaye46 True. So far I am asymptomatic and hopefully stays that way for years. A lot depends on progression, including the type of dry AMD. Hard drusen are less likely to cause geographic symptoms than soft drusen (perhaps more likely to merge with other soft drusen?). Tis a learning experience.

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I don't know which kind of drusen I have; I didn't realise that there were different types. So far, my vision is fine in the eye with AMD; in the other eye, I have a macular pucker, which is more problematic at the moment. Ah, the joys of ageing.
Best wishes to you Kaya.

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