1. < Parkinson's Disease

Parkinson's plus restless leg syndrome

Posted by carolynbluebird @carolynbluebird, Jul 3 7:56am

I have Parkinson's disease with restless leg syndrome. I have been using apple cider vinegar gummies. The gummies seem to help my legs.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

marcieb | @marcieb | Jul 5 12:09pm

Oohh - thank you! We have tried mustard, pickle juice, and medication, but apple cider vinegar gummies may be a good option. How many do you take and at what times?

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Moderator
Lisa Lucier, Moderator | @lisalucier | Jul 8 12:40pm

Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what they may know helps the legs @artemis1886 @emhottch @rjjb @ess77. @hopeful33250 also may have some thoughts.

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3 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 8 2:32pm
In reply to @lisalucier "Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what..." + (show)
@lisalucier

Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what they may know helps the legs @artemis1886 @emhottch @rjjb @ess77. @hopeful33250 also may have some thoughts.

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Hello @marcieb and @carolynbluebird, and welcome to the PD support group on Mayo Connect. I understand about the "extra activity" that often takes place at night. I take amantadine, one a day, and I reserve the dose for the evening. It helps keep my limbs quiet during the night. As we all know, not all medications work for everyone, but this has worked for me.

As you are both new to Mayo Connect, please share, as you are comfortable doing so, a bit about your journey with PD. Are you newly diagnosed? What are your most troublesome symptoms?

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marcieb | @marcieb | Jul 8 3:17pm

Thank you both!
I am a caregiver.

I do have a question- how active is the Mayo functional medicine clinic with the Parkonson’s group? I’d love to know more. Do they offer virtual appointments? Are they covered with insurance?

It is a difficult journey trying everything to see what sticks, with so many symptoms!

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artemis1886 | @artemis1886 | Jul 10 8:28pm
In reply to @lisalucier "Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what..." + (show)
@lisalucier

Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what they may know helps the legs @artemis1886 @emhottch @rjjb @ess77. @hopeful33250 also may have some thoughts.

Jump to this post

Lisa I don’t have restless legs or Parkinson’s. What I do have is tremors in my hands and legs from motor neuropathy.
My diagnosis is autoimmune severe axonal sensorimotor peripheral polyneuropathy
Small Fiber neuropathy
CAN- cardiac autonomic neuropathy
Dysautonomia
My autoimmune diagnosis
Lupus
Sjogrens
Hashimotos
Mixed connective tissue disease

I do not carry genetics for Parkinson’s or the antigens. Not sure how I got copied in. I use muscle relaxers when my hands cramp up and it hurts. I am on IVIG that is helping with dizziness and balance problems. I am in stage 4 of the neuropathy. I have fallen three times in the last four days. Broke my ankle.

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hello56 | @hello56 | 13 hours ago
In reply to @lisalucier "Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what..." + (show)
@lisalucier

Tagging a few members who may be knowledgeable about Parkinson's and/or restless leg syndrome for what they may know helps the legs @artemis1886 @emhottch @rjjb @ess77. @hopeful33250 also may have some thoughts.

Jump to this post

Hi there, I am a patient at Mayo Clinic Jacksonville and have been recently prescribed the Neupro patch for Parkinson’s and restless legs. Has anyone tried this patch?

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