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Resolved WPW and still having symptoms
My husband is 30 years old and was diagnosed with WPW at 27 years old. He had an ablation and was resolved. Two years later he is having bizarre symptoms that no doctors can seem to narrow down. He will have random spells of blurry vision and a severe headache to follow. Sometimes he will wake in the night with a heavy chest, can't take deep breaths and sweating. In one instance the left side of his body and face went numb and tingly. We are meeting with PCP today to go over a brain MRI and neck ultrasound, but I am starting to think this is all heart related. His heart rate stays in the 50-90 range and sometimes blood pressure is in 130/80. All EKG ran always come back normal, so cardiologist has recently ruled out it being his WPW. He usually feels very fatigued and "off" for the days following these episodes. What are we missing? What do we need to be asking for? These episodes have been going on for the last six months and come at random times. He sometimes will take a baby aspirin when he starts to feel bad and that will help. Do we need to ask for an Echo or something different for his heart?
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It would be good to have a snapshot of the electrical rhythms during the episode. If you haven't had a holter monitor, you might want to ask for that. There are looping monitors and event monitors. But it seems better to have the Holter. Since the events are random, I would want to extend the monitoring until he has the event. Even without WPW something else electrical could be amiss. Maybe something will be evident on the imaging. The face numbness sounds like a TIA. Evidence of those can be lost quickly. But they can presage a major heart event. It's good you are directing this Best wishes.
The unilateral nature of the symptoms suggest to me that it is brain originated, and not the heart. The blurry vision and sweating 'could be' a result of arrhythmia, or at least the sweating can be. I've had it during trying bouts of atrial fibrillation. But I haven't seen any posts by people complaining about blurry vision, and certainly not a headache. Of course, we're all a little different in how we respond to such things, so I wouldn't suggest for a moment that this is absolutely not cardiac.
Maybe he needs a consult with a neurologist. The numbing, tingling on one side of his face, the sweating and difficulty breathing was something I experienced. My daughter took me to ER, stayed overnight for many tests, only to be told my heart was fine, altho I do have a bundle branch block. A few months later, I had a stroke. Please don't rule that out while searching for answers.
We met with PCP and Cardiologist on Monday. PCP thinks the blurry vision and headaches are migraines and are no correlation to the chest pain. Met with cardiologist after and he wanted to do a monitor and echo on my husband but couldn't get him in till March. After day five of chest pain, we spent yesterday in the ER trying to get answers. After a chest CT, Bloodwork, EKG and Echo everything came back normal. The ER Dr thinks that he might have acute pericarditis. Since this is a clinical diagnosis the only way to know for sure is to treat it and see if my husband has relief. He was given a steroid shot when we left the ER and prescribed high dose ibuprofen. We have been out of the ER for 16 hours now and my husband has no chest pain. Will be calling his cardiologist to consult and hopefully prescribed different medicine. We were told he probably had a virus or was sick that attacked the sac around his heart causing this. Also, could be why he has these symptoms every so many months when his body or immune system gets run down. Hoping the cardiologist agrees and we got to the bottom it.