Repeated UTI & Yeast infection w/ autonomic neuropathy

Posted by jealge1 @jealge1, Jul 9, 2021

I was diagnosed with SFN about 4 months ago, mostly autonomic issues. I've been diagnosed with 2 UTI's and 3 yeast infections since then. This time I had both at the same time, and even after treatment, it still seems to be lingering. Before my diagnosis, it had been years since I had either.

I drink lots of fluid each day (150+ oz) and take cranberry extract daily, so I'm being preventative.

Does anyone else seem to have chronic urinary & yeast issues? I'm wondering whether SFN may have something to do with my body not getting over them.

Thoughts?

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@jealge1, I think it does play a part but I'm not sure how big of part. Here's some information from Neuropathy Commons website:

Neuropathy & Your Bladder — https://neuropathycommons.org/neuropathy/neuropathy-your-bladder

It sounds like you have a plan to help by drinking lots of fluids and taking the cranberry extract. Did your doctor or urologist have any suggestions or thoughts?

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@johnbishop

@jealge1, I think it does play a part but I'm not sure how big of part. Here's some information from Neuropathy Commons website:

Neuropathy & Your Bladder — https://neuropathycommons.org/neuropathy/neuropathy-your-bladder

It sounds like you have a plan to help by drinking lots of fluids and taking the cranberry extract. Did your doctor or urologist have any suggestions or thoughts?

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Hi John. I agree! Good bladder info. Many people don’t realize that small fiber neuropathy also affects autonomic. After about 10 years I started with the autonomic issues. High heart rate, low blood pressure, The worst for me is the thermoregulation, and stupid bladder LOL

Neuropathy Commons, Max Klein, and Ann Louise Oaklander are really great resources. They have some good YouTube videos as well.

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It seems to me that a good stop for frequent UTIs is the urologist. My BIL had a genetic issue with how his organs worked and it was helpful. Sometimes there is an issue with complete emptying of the bladder and that can be causal, also.

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I was treated for yeast and urinary problems for years. I was finally referred to a dermatologist and diagnosed with lichen sclerosis. Now that I have been treated with a cortisone ointment I am doing fine. Lichen sclerosis is an autoimmune disease. I believe the Mayo clinic describes it very well.

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Just to add more to the conversation, I did an experiment yesterday where I kept track of my intake and measured my urine output. It certainly wasn't scientifically accurate, but not way off. My intake of fluids (all water other than 16 oz of black tea in the morning) was ~4600ml. My output was ~2725ml. Those numbers are WAY off and show that even though I urinate frequently, I'm not removing what I put in. I will continue the experiment for a few more days to see if the numbers are consistent. I plan to ask my neuro for a referral to a urologist to see if there is anything that can help this. Thanks folks for you thoughts and experience.

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there are numerous forums on Facebook regarding SFN and Sjögren’s to which I subscribe. It seems that recurring UTI’s and yeast infections are fairly common complaints.

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@jealge1

Just to add more to the conversation, I did an experiment yesterday where I kept track of my intake and measured my urine output. It certainly wasn't scientifically accurate, but not way off. My intake of fluids (all water other than 16 oz of black tea in the morning) was ~4600ml. My output was ~2725ml. Those numbers are WAY off and show that even though I urinate frequently, I'm not removing what I put in. I will continue the experiment for a few more days to see if the numbers are consistent. I plan to ask my neuro for a referral to a urologist to see if there is anything that can help this. Thanks folks for you thoughts and experience.

Jump to this post

FYI- D-Mannos which is a supplement is supposed to help prevent recurring UTI’s, it can be purchased on Amazon.

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@jealge1

Just to add more to the conversation, I did an experiment yesterday where I kept track of my intake and measured my urine output. It certainly wasn't scientifically accurate, but not way off. My intake of fluids (all water other than 16 oz of black tea in the morning) was ~4600ml. My output was ~2725ml. Those numbers are WAY off and show that even though I urinate frequently, I'm not removing what I put in. I will continue the experiment for a few more days to see if the numbers are consistent. I plan to ask my neuro for a referral to a urologist to see if there is anything that can help this. Thanks folks for you thoughts and experience.

Jump to this post

I was a nurse for 29 years. I had issues with UTI's also. I found out through a test the urologist did that I have urinary retention. One of the things he told me was sit for awhile and relax. Or get up when you think you are done and walk to the door and back and sit again. I have been able to do the sitting thing and it works. If that is what it is.

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So to follow up on my saga, I had 2 negative tests for a UTI and my vaginal yeast swab also came up negative. I saw my GYN this week, and he explained that the loss of estrogen post-menopause & hysterectomy can mimic the symptoms of a yeast infection. Also the neuropathy can lead to more UTI's, which can lead to vaginal irritation. As with so many other issues, SFN can cause and exacerbate problems with our whole body.
I just want to let other women with SFN know that even though they don't find anything in literature about their symptoms, you are not alone.

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Research "D-mannose". I was watching* an Alzheimer’s video and Dr recommended to prevent UTI's.

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I had a similar problem to yours. Saw many gynecologists. Finally I was referred to an astute dermatologist who asked me whether there was any asthma in my family or any eczema in the family, to which I responded in the affirmative and whetherI had had any genital surgery. Finally after a skin biopsy she diagnosed me with lichen sclerosis, an autoimmune skin disease. I was put on a steroid ointment to be used several times a week for 3 weeks on and one week off, as well as amitriptyline for pain as an off label use. I also take pregabalin (lyrica) for nerve pain, without any side effects at all. Now My lichen sclerosis is completely under control (no more pain) no more yeast infections, fewer bladder infections which at any rate have a different cause in post menopausal women. I would recommend any women who is struggling with your symptoms of (possibly wrongly diagnosed yeast and or bladder infections) to see a dermatologist who has experience treating lichen sclerosis. Hope this helps all women who are looking for possible answers be at least screened for LS.

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