Reoccurring Nasal fissure that has actually deformed the nostril shape

Posted by angelak43 @angelak43, Jun 13 9:43pm

!!!!! Attention !!!!!! I’ve seen numerous doctors that are unsure why I have a painful nostril fissure that will not heal. It stings like a paper cut and has literally deformed the shape of my nostril because it has gone on so long undiagnosed. I’m praying this post will reach the right eyes who can lead me down the right path. My labs look normal. I do have reoccurring anal fissures too! Currently I’m doing treatment for candida in my gut. There is a perfectly round Blister in my throat that my ENT calls a tonsil cyst. The right tonsil has lightened in color. The nasal camera showed Edema a redness and pain in and around my vocal cords for many months. My ENT said that could be from LPR reflux. The doctor now recommends tonsillectomy; but that doesn’t explain why I have a strange blister/cyst in my throat that changes it’s form, and he also can’t explain the nasal fissure that will NOT heal! Someone please help!!

Hi @angelak43, I can see that this is extremely distressing and that you're seeking professional medical help. Now you're casting the net in this patient forum to see if anyone else may have a similar experience or suggestions.

Has your ENT referred to the fissure as nasal vestibulitis? See more here:
– What to know about nasal vestibulitis https://www.medicalnewstoday.com/articles/327427
"Nasal vestibulitis tends to be a benign condition. However, in rare cases, it can spread to other areas of the body. For this reason, a person should seek prompt treatment."

Are you also in the care of a gastroenterologist?

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@colleenyoung

Hi @angelak43, I can see that this is extremely distressing and that you're seeking professional medical help. Now you're casting the net in this patient forum to see if anyone else may have a similar experience or suggestions.

Has your ENT referred to the fissure as nasal vestibulitis? See more here:
– What to know about nasal vestibulitis https://www.medicalnewstoday.com/articles/327427
"Nasal vestibulitis tends to be a benign condition. However, in rare cases, it can spread to other areas of the body. For this reason, a person should seek prompt treatment."

Are you also in the care of a gastroenterologist?

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Thank you for this reply. Yes I filled a script for a cream that is supposed to kill the bacteria for vestibulitus. My condition is not that unfortunately and was unsuccessful with the ointment many times.
I am in the care of GI doctors too, as well as colorectal surgeon keeping an eye on rectal fissure. I feel like I’m not getting real solutions with them just surgery recommendations. Surgery is very last resort for me in any medical situation. :(.

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Hello @angelak43

I just read your post about the nasal and rectal fissures you are experiencing. This does sound very frustrating and I can certainly understand your desire to avoid surgery. That is generally the last resort for most of us.

I'm wondering if you have considered visiting a multi-disciplinary health care facility? I'm thinking of perhaps a university medical school or one of the three Mayo Clinic facilities. Because these types of medical institutions are research-oriented they are often very good at putting the pieces of a complicated health problem together and giving a diagnosis.

If this were me, I would definitely get a second opinion at one of these facilities. If you live near a Mayo Clinic (Minnesota, Florida, or Arizona) here is the website where you can request an appointment,https://www.mayoclinic.org/appointments

I do hope that you find help for this problem. Will you post again with an update on how you are doing?

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Have you and a good doctor examined every single medication you take?
I ask because I took an anti-depressant medication years back and after 6 months I asked if painful white blisters inside my nose were from the medication. He said it was very rare, but took me off the meds.
I realize you are having a terrible time, I hope you can get to a new set of doctors to advise you before going through surgery.

REPLY
@colleenyoung

Hi @angelak43, I can see that this is extremely distressing and that you're seeking professional medical help. Now you're casting the net in this patient forum to see if anyone else may have a similar experience or suggestions.

Has your ENT referred to the fissure as nasal vestibulitis? See more here:
– What to know about nasal vestibulitis https://www.medicalnewstoday.com/articles/327427
"Nasal vestibulitis tends to be a benign condition. However, in rare cases, it can spread to other areas of the body. For this reason, a person should seek prompt treatment."

Are you also in the care of a gastroenterologist?

Jump to this post

I get these paper cut like fissures in exact same spot every November/December. Must be due to heating coming on and drying me out. Edge of nose hurts a lot and I apply almond or argan oil and keep in moist which helps. Your info was great to read for now I know I better seek help if it doesn’t go away. In past, I did have anal fissure and doctor ignored when I looked for help, and so it became an anal fistula which resulted in two surgeries.

REPLY
@hopeful33250

Hello @angelak43

I just read your post about the nasal and rectal fissures you are experiencing. This does sound very frustrating and I can certainly understand your desire to avoid surgery. That is generally the last resort for most of us.

I'm wondering if you have considered visiting a multi-disciplinary health care facility? I'm thinking of perhaps a university medical school or one of the three Mayo Clinic facilities. Because these types of medical institutions are research-oriented they are often very good at putting the pieces of a complicated health problem together and giving a diagnosis.

If this were me, I would definitely get a second opinion at one of these facilities. If you live near a Mayo Clinic (Minnesota, Florida, or Arizona) here is the website where you can request an appointment,https://www.mayoclinic.org/appointments

I do hope that you find help for this problem. Will you post again with an update on how you are doing?

Jump to this post

Thank you. I called Mayo in Minnesota but they don’t take my insurance. I’ll call Arizona today.

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@happy2bhear

Have you and a good doctor examined every single medication you take?
I ask because I took an anti-depressant medication years back and after 6 months I asked if painful white blisters inside my nose were from the medication. He said it was very rare, but took me off the meds.
I realize you are having a terrible time, I hope you can get to a new set of doctors to advise you before going through surgery.

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Wow may I ask what med that was?

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@zaa

I get these paper cut like fissures in exact same spot every November/December. Must be due to heating coming on and drying me out. Edge of nose hurts a lot and I apply almond or argan oil and keep in moist which helps. Your info was great to read for now I know I better seek help if it doesn’t go away. In past, I did have anal fissure and doctor ignored when I looked for help, and so it became an anal fistula which resulted in two surgeries.

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I’m so very sorry you went through that! What could I do to avoid it becoming fistula? I have two different compound creams. I also have a cream from Emuaid. I feel really hopeless that this won’t heal and I don’t want to have rectal surgery! I just live constantly with this fissure. Should I avoid my regular exercise? What advice do you have?

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@angelak43

Thank you. I called Mayo in Minnesota but they don’t take my insurance. I’ll call Arizona today.

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When u call, if they don’t take ur insurance, ask for nearby recommendation.

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@angelak43

Wow may I ask what med that was?

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Wellbutrin high doses. I believe another one also. I never knew to ask about side effects like that. Wellbutrin also caused gritting teeth, never knew.

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@angelak43

I’m so very sorry you went through that! What could I do to avoid it becoming fistula? I have two different compound creams. I also have a cream from Emuaid. I feel really hopeless that this won’t heal and I don’t want to have rectal surgery! I just live constantly with this fissure. Should I avoid my regular exercise? What advice do you have?

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No, you sure don’t want it to become a fistula. Surgeon kept slicing it open to drain (while I was awake) and heal but finally did surgery. I can’t advice you on anal fissure care but I know you need to eat plenty of fiber, be easy on wiping and perhaps soak in tub. Stay out of chlorinated water.

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@zaa

No, you sure don’t want it to become a fistula. Surgeon kept slicing it open to drain (while I was awake) and heal but finally did surgery. I can’t advice you on anal fissure care but I know you need to eat plenty of fiber, be easy on wiping and perhaps soak in tub. Stay out of chlorinated water.

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Thank you so much! I sure hope it heals!

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