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jww1
@jww1

Posts: 1
Joined: Oct 18, 2016

Reoccurrence of colon cancer

Posted by @jww1, Oct 17, 2016

Was diagnosed with stage 3 colon cancer in May of 2015, had a color resection with no post op problems.did a 6 month regime of chemo. Pet scan in october was free of cancer. In Jan of 2015 ,I completed my chemo. In June of 2016 developed pain in abdomen, new pet scanned showed 3 hot spots, 1 lymph node in groin, mass on the outside of my colon wall, and a area around my belly button. Restarted chem in August of 2016, just had a fresh pet scan done 1 week ago it shows no decrease in size of the cancer but it shows a new lump ode that is involved .

I do not understand why a reoccurring cancer is happening, I’m not handling this well and the stress on my wire and family is sky rocketing
. My doctor idem so vert capable but is lacking in communication. Feel the time is right for a second opinion.why does it seem the colon cancer reoccurs so much.

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REPLY

@jww1, welcome to Connect. It must be such a blow to hear that the cancer has returned. I'm tagging fellow Connect members who may have experiences to share and support to offer. They are all too familiar with disease recurrence. Please meet @retairforceman @ilene1 @overwhelmed @grammyx4

You may also be interested in this discussion
– Have you had TACE or SirSpheres radiation treatment? Please share http://mayocl.in/2dktkzs

In this discussion you'll meet @sara1257 who is receiving TACE treatments for liver cancer. @bbams' husband is getting it for colorectal cancer that metastasized to the liver. I think you'll appreciate the experiences they share and they will welcome you to join the conversation there.

If you would like to seek a second opinion at Mayo Clinic, please contact the campus of your choice in MN, FL or AZ http://mayocl.in/1mtmR63

It sounds like you need more answers than you are getting right now. Is there perhaps a nurse specialist that you could speak with?

Liked by jenna12

Hi @jww1, emotional support can really important when you’re going through something as stressful as a recurrence of cancer. There was many forms of support available.

For example, the local hospital may run support groups. Your local chapter of the American Cancer Society could be a great resource too. Sometimes being around others going through cancer can help, to talk things through, get advice. Share with your doctor about how you’re feeling emotionally — they may have some suggestions too.

Please don’t go this alone.

Hi Jw, I know how you feel I talk to people like you and me on this site and on inspire it is a site where people like us can talk and share what we feel because every body always thinks they know how you feel but they really dont the people that are living it know so just stay strong and as postive as you can and enjoy every day you have with your family and friends i will be thinking about you so write any time you like sara

I have had a similar experience. Stage 3 diagnosis in Jan. 2015. Chemo 5-fu for 6 months. Scan followed showing no cancer. Six months later a pet scan showed hot spots in clavicle, liver, abdomen and lung. The doctor I was seeing gave me 6 months to live.
I called Mayo and got in two weeks later. Treatment started in July 2016. It is now Dec. 2016 and pet scan shows no cancer. I’m told it will come back. Can this be cured?

@azlinda

I have had a similar experience. Stage 3 diagnosis in Jan. 2015. Chemo 5-fu for 6 months. Scan followed showing no cancer. Six months later a pet scan showed hot spots in clavicle, liver, abdomen and lung. The doctor I was seeing gave me 6 months to live.
I called Mayo and got in two weeks later. Treatment started in July 2016. It is now Dec. 2016 and pet scan shows no cancer. I’m told it will come back. Can this be cured?

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Welcome to Mayo Clinic Connect @azlinda! Thank you for sharing your similar experience.
I’m sorry to hear of your diagnosis but prayers to you and that your PET scans continue to stay clear!

I hope you find Connect to be a place you can frequent and get information and support from other community members. @retairforceman @ilene1 @overwhelmed @grammyx4 , can any of you comment to Linda’s question? Perhaps this would be a good question for your provider too.

@azlinda, how often will you have to go in for return visits with your physician? every 3 months to do another PET?

I will have a PET scan every 3 months. Has anyone had experience with xeloda? My doctor said my progress is so good he wants me to try the oral chemo.
I appreciate your input.

Liked by Jamie Olson

I was on xeloda. Drink red gatorade for nausea and dehydration.

Thank you. Did you find xeloda worked?

Yes but i should have stayed on it. The cancer is back they say

I’m so sorry to hear that.
How long did you take xeloda. I haven’t started it yet.

@retairforceman

Yes but i should have stayed on it. The cancer is back they say

Jump to this post

@retairforceman I’m so sorry to hear of the return of your cancer. Are you planning on returning to the previous med? Keep in touch and let us know how you are doing.

As a new member, I appreciate all the suggestions and input others have on colon cancer treatments and aftercare
Azlinda

@azlinda

As a new member, I appreciate all the suggestions and input others have on colon cancer treatments and aftercare
Azlinda

Jump to this post

Hi @azlinda,
How are you doing? Have you started Xeloda (capecitabine) treatment yet?

You might be interested in sharing with other people being treated with Xeloda (capecitabine) for colorectal cancer in this discussion:
– Xeloda http://mayocl.in/2lSV5o9

Hello @retairforceman

At the first of the year you mentioned that you were dealing with a recurrence of colon cancer.

I was wondering how you were doing with that and if you had started any treatments. Please feel free to touch base with us and let us know how you are doing as you feel comfortable doing so.

Teresa

I am so sorry to hear this as a person who also had reoccurrence of colon cancer to my liver (stage four). I got a second opnion in the beginning of my diagnosis and found an oncologist who is brilliant, compassionate, I can clearly understand him, and most of all I trust that he is doing everything he can for me. When you are truly comfortable with your cancer care team, the stress level goes way down. It is never too late for a second or even third opinion. Good luck to you.

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