Relapsing Polychondritis Treatment? Overlap with HUVS

I am new here, so not sure how to find relatable information previously posted, so I just wanted to try a question.

I have been diagnosed with Hypocomplementic Urticarial Vasculitis Syndrome (HUVS), in 2024 after about 6mos to a year with multiple rheumatologists. Only one lab out of normal, I had low C4 protein with normal C3. History of rashes/hives going back 25+ years, with the first rash being 30 years ago at least.

Received the Relapsing Polychondritis (RP) diagnosis around 6 months ago.

I’ve tried and failed hydroxychloroquine (start and stop x3 with rashes developing all 3), and Imuran (rash).

I most recently had been started on Colchicine, and the Dapsone with a dose increase on the Dapsone when I got the RP diagnosis. I really thought I was feeling better, but then my labs tanked and I had to stop the dapsone unfortunately.

Around that time I came down with shingles, and I’ve been struggling ever since.

I currently am also on Zyrtec 10mg twice per day, Famotidine 20mg twice per day, and Singulair once per day.

Thankfully I haven’t had a rash/hive flare in some time.

Unfortunately, the sudden stop if dapsone and maybe the bout of shingles has my RP in a huge flare. Daily heat, redness and pain in my ear(s), swelling/heat over cheekbone(s), tenderness of nasal cartilage, ringing in ears, worsening of hoarseness of voice (I’ve noticed it for over a year maybe up to
2 but didn’t mention it to a doctor because my family says they can’t hear it), tenderness of trachea, intermittent sternal and rib area pain, and one severe flare of pain in esophagus/esophageal spasms… which all has me concerned and on edge and just trying to learn more about the disease.

My rheumatologist has referred me for pulmonary function tests and to a pulmonologist, and has recommended I start infusion medication if infliximab, just waiting for insurance prior authorization (and the rheumatologist to determine the appropriate dosage).

Can anyone relate?
Have any recommendations on where to find more information about the diseases and best treatment options?
Has anyone been treated with infliximab? How did it work?

Any information would be appreciated!