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jesspecoraro
@jesspecoraro

Posts: 1
Joined: May 21, 2018

Relapsed CNS Primary Brain Lymphoma - Linked with Epstein-Barr Virus?

Posted by @jesspecoraro, Mon, May 21 2:26pm

My father is 71 years old and was diagnosed with CNS Primary Brain Lymphoma in May of 2016. We have exhausted all traditional treatment efforts; chemotherapy and radiation are no longer an option for us. We are looking into holistic healing routes. I realize this is not necessarily the appropriate forum, but I am desperate to find help. My question for anyone who reads this is if you’ve found any supplements or natural healing remedies that have had an effect on your cancer, whether it be CNS Lymphoma or otherwise?

I have also noticed the link between the Epstein-Barr Virus and Non-Hodgkins Lymphoma, and wondering if anyone had ANY information as far as that connection goes, or if your doctor tested for the presence of EBV or any auto-immune diseases when you were diagnosed with cancer?

Thank you in advance to anyone who may take the time to answer. It is appreciated beyond words.

Liked by cindylb

REPLY

Welcome to Connect, @jesspecoraro. It is so hard to hear when cancer returns, and treatment options are limited. There may be complementary therapies that can help ease symptoms, but I would be cautious about expecting cure. You might be interested in reading and taking part in this discussion:

– Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/

Have your father's doctors talked about possible clinical trials? What about palliative care? Do you live with or near your father?

So sorry to hear about your father. I can only add this………I am a breast cancer survivor and also possibly have type of skin lymphoma in the early stages, so early they are only watching and waiting. The lymphoma might be linked to the Epstein Barr Virus. My doctors check my levels for EBV every six months and think there may be a connection between the virus and mono I had just before my breast cancer and my elevated levels of EBV, which seems to come and go. Don't know if that might help? Hugs to you as you navigate the next steps.

Sending prayers to your family and hope that you find something that will work to help him. I have Chronic Lymphocytic Leukemia and fight with it daily, and I have had skin melanoma, I know it's nothing like what your father is dealing with; I do know the struggles and frustration that comes from living with it and trying to find ways to stay healthy. Huggs to you and may the lord bless you with the answers you are looking for.

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