Relapse endometrial cancer

Posted by samaco @samaco, Nov 15, 2020

So, I was diagnosed w/stage 1A grade 1 endometrial cancer in May of 2018. After a laparoscopic hysterectomy, all was fine until relapse diagnosed 3 weeks ago. The tumor didn't even show on MRI, and the PET showed nothing. I am about to start radiation. Is there anyone out there in similar situation now or w/past experience? If so, I'd love to hear from you.Thank you.

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@ihndz

Hi jeanadair123, hope all is well with you. How did treatment go and were they able to do surgery again on the cuff or how do they treat it. Hope they took care of it to your satisfaction. God bless and good Luck!

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I had external radiation and brachytherapy. I have terrible sharp abdominal pain in my groin that radiates to my back, feels like toothache. Oncologist did mri, Ct and pet scan all came back normal. Dr said to go to PT and have been seeing chiropractor it helps for a day and starts again.
No one seems to know what it is and I think that drs think that because I had scans that should be good. Does anyone else have these kind of pains. Maybe it’s scar tissue or it’s from the radiation .
No one ever answers those questions.

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@jeanadair123

No systems just kept changing doctors until someone used a speculum and that is how they found it.

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Unbelievable! Thank you!

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@jeanadair123

I had external radiation and brachytherapy. I have terrible sharp abdominal pain in my groin that radiates to my back, feels like toothache. Oncologist did mri, Ct and pet scan all came back normal. Dr said to go to PT and have been seeing chiropractor it helps for a day and starts again.
No one seems to know what it is and I think that drs think that because I had scans that should be good. Does anyone else have these kind of pains. Maybe it’s scar tissue or it’s from the radiation .
No one ever answers those questions.

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@jeanadair123 Is it possible that the pain is soft tissue (muscles)? Depending on what I’m doing I get groin pain that is sharp too. I went to a pelvic floor physical therapist who helped me figure out this was the internal obdurator muscle that was affected by having a hysterectomy and total left hip replacement within 3 months of each procedure. The pain has never really gone away however I now recognize the source and I have exercises to do for it.

Sure, it could be scar tissue too. What other explanations did the oncologist come up with since your scans were all negative (thank goodness!)?

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@naturegirl5

@jeanadair123 Is it possible that the pain is soft tissue (muscles)? Depending on what I’m doing I get groin pain that is sharp too. I went to a pelvic floor physical therapist who helped me figure out this was the internal obdurator muscle that was affected by having a hysterectomy and total left hip replacement within 3 months of each procedure. The pain has never really gone away however I now recognize the source and I have exercises to do for it.

Sure, it could be scar tissue too. What other explanations did the oncologist come up with since your scans were all negative (thank goodness!)?

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Thank you for the info I shall look that up. I go to a chiropractor no cracking of bones he uses what a call a clicker and pressure. I am also seeing a physical therapist we are going to try the Bowen procedure. Actually my gyno oncologist never mentioned that it could be anything else, I think she is probably tired of me calling and just gives me the tests to put my mind at rest. I asked her about PMC pelvic radiation disease in an email and really didn’t get a response. The pain is so sharp it takes my breath away. I really appreciate your help and info. Thanks so much to you and Mayo connect.

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@jeanadair123

I had external radiation and brachytherapy. I have terrible sharp abdominal pain in my groin that radiates to my back, feels like toothache. Oncologist did mri, Ct and pet scan all came back normal. Dr said to go to PT and have been seeing chiropractor it helps for a day and starts again.
No one seems to know what it is and I think that drs think that because I had scans that should be good. Does anyone else have these kind of pains. Maybe it’s scar tissue or it’s from the radiation .
No one ever answers those questions.

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Hello! I was diagnosed with endometrial cancer 1B stage two. I had a complete hysterectomy July of 2022, followed by bracytherapy. In March of this year I began having those exact symptoms. So far no answer either. It’s been going on for 7 months. I will keep you posted if I find out anything! Hope you are feeling better!

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@jjevitts

Hello! I was diagnosed with endometrial cancer 1B stage two. I had a complete hysterectomy July of 2022, followed by bracytherapy. In March of this year I began having those exact symptoms. So far no answer either. It’s been going on for 7 months. I will keep you posted if I find out anything! Hope you are feeling better!

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Amazing.I was interested in what Helen said that made more sense to me. It’s insane that in order to find out what’s wrong with us we have to go on Mayo connect. Surely I can’t be the only drs patient that has this after all isn’t that what they are supposed to specialize in? I have major trust issues with doctors having missed my cancer twice. Most of my doctors are aware of this I think that’s why I always get the tests I ask for. Thanks. I am going to try the internal obdurator exercises I found some beginners ones. I’ll let you know how the Bowen pt works also.

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