Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for clou @clou

I also recently found out I have a redundant colon with a fixed closed Bend in the sigmoid. I've had one surgeon blow me off and tell me that either increase fiber or full colostomy bag. I know there has to be other options so I'm seeking a second opinion. I suffer with bladder issues due to the constant pressure. I struggle daily with getting things moving and the urinary issues.

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I had surgery 3 years ago. I learned the redundant colon had caused the rectocele I had repaired several years earlier. When I hear urinary issue it sounds like possible rectocele. Sadly in my area 2 different surgeons do the two surgeries.
Make no mistake although Robotic surgery lessons scar tissues and healing time incision wise its still a major! surgery. Good luck!

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I have a redundant colon too( noted on colonoscopy)... Not sure if that had given me constipation over the years or not... Interestingly enough I had a rectocele which I just had repaired last summer... I attribute that more to having 3 children.. I'm about 5 '0 and weigh 100 lbs .... but I also strained and had a lot of constipation for a lot of my life.. I was never told anything was abnormal about the redundant colon but assume it takes longer for waste to travel... One thing I use that is natural and really helps is a mixture of 1 cup applesauce, 1 cup prune juice, 1 cup wheat bran. I take a couple of TBS per day and it keeps things moving...

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Profile picture for sallyw133 @sallyw133

Obviously, just my non-medical input, but though Prune Lax sounds like it would be a “natural” way to solve your constipation, it is actually senna. Do some research if you plan to take on a daily basis or consult your gi. Senna is an osmotic laxative and can actually cause changes in your colon. Like I said, just an opinion here but my gi only recommends 2 a week at most.

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I also checked out PruneLax and found the same thing. It can be one cause of melanosis coli . Glad you shared. It can change the color of your colon. My research said it is not life threatening. It causes a dark brown mucosa pigmentation in the colon. It clears up if you stop the cause of it, but can take awhile. Don't even know you have it, usually detected by a colonoscopy. But something to research and think about.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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Buy the Magnesium Oxide as a vitamin supplement. Much cheaper than Renew Life. I take 750mg of Magnesium Oxide a day. Many name brands that use it have higher doeses. Around 70% of the magnesium you consume is expelled from your body within 24 hours which is why so many people experience a deficiency.

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Profile picture for lashbomb @lashbomb

I hear ya! I have a redundant colon and I suppose IBS-C. I keep gaining weight though yet I eat well, work out, tons of water. But I am lucky if I go once a week. Miralax/fiber/ that stuff does nothing for me. I have tried Linzess. Didn’t work. If anything made my problem worse. Was on vacation last week. Had the whole bottle of magnesium citrate. No movement til 3 days later.
I’m not sure what I can do and trying without long term side affects. Hence how I got to these lovely conversations. But the fitting in clothes and relationship issues I am with you 100%. Nice to not feel so alone since no one I know goes through any of it.

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Consider trying humble mineral oil. I have what you have.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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The ingredients of Prunelax are: Active Ingredients: Prunes extract, Cassia angustifolia vahl (which is Senna), Cassia senna L - so I just eat prunes on my morning oatmeal and I use Senna before bed. I've struggled since I was 16 and had emergency surgery for adhesions from a previous surgery. The surgery when I was 16 resulted in the Redundant Colon. I've had Ovarian Cancer surgery 3xs which has only made chronic constipation worse. I am now 73 and live on a restricted diet -vegetarian and NO flour products - NONE. Most of the OTC products can be obtained cheaper by using the natural products such as Prunes and Senna. Senns is very cheap to buy.

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I’ve been suffering for two years with chronic constipation abdominal pain, loss of appetite, extreme weight, loss, fatigue, bloating, all which caused clinical depression. I was told that it was probably IBS – C. I’ve tried to manage with food , meditation and eliminating anxiety in my life. Laxatives don’t really work but cause nausea. Of course I have to do a clean out about once every 10 days usually with an enema, which hurts during and after. Finally, after going to 4 Gastroenterologist, several trips to the ER and urgent care center and finally changing my internal doctor, a diagnostic colonoscopy was performed. It revealed diverticulitis, diverticulosis, and a redundant tortuous colon. I am undergoing currently a colon transit test using.Sitz beads. I’m anxiously waiting the results as I’ve been told that Gastro surgery is highly likely. Has anybody else had surgery for this disorder please? I’m 70 years young and try to stay as active as this condition allowed with swimming, walking and paddle boarding. I’m so ready for a change. Thank you.

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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I wish I could eat prunes, I love them! But they give me such terrible gas I can’t even get out of the bathroom.
I’ve recently been diagnosed with redundant colon. I’m having bouts of constipation and diarrhea. I have a couple of weeks of feeling normal then a week of discomfort then I get that back to normal and it seems to all start over again. Is almost a year since my diagnosis. I think this just might be a new way of life. Cannot plan any long trips. Have to always be feeling safe even before a trip to the store. I take miralax every morning but depending on what I eat the day before I’m never sure how I can plan my day. It’s a game of finding the right balance for each individual body!

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I agree with the mineral oil - I always had to use 3 TB or no results. At this point it is probably best to wait for the test results. With diverticulitis and a Redundant colon test results are critical. I have a Redundant Colon as a result of emergency surgery when I was 16 (appendectomy caused adhesions). I've had Ovarian Cancer surgery 3 times.

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Had a colonoscopy and this was the findings:
Redundancy of the colon, to the sigmoid colon transverse colon, and both flexures obscuring portions of the colon. Multiple redundant loops of colon noted, particularly the sigmoid colon, transverse colon and both flexures. This does obscure portions of the colon. There was no retrograde obstruction to either barium or air. No focal colonic stricture identified. No circumferential mass lesion seen in the colon. Tiny occasional diverticuli noted.
The doctor put me on Linzess which I ended up not being able to stand. I ended up changing doctors because my first one just wouldn't listen to me. I'm currently at another doctor who just put me on Trulance and wants to do another colonoscopy soon.
I'm consistently nauseous with lots of discomfort in my midsection. I have severe constipation (sometimes going well over a week-two weeks without any movement at all). I can't afford this medicine because my insurance won't pay for it, so even if it works it's not a good thing for me. I try to tell the doctors that but they don't seem to care and just want to push pharmacy items that are RIDICULOUSLY priced. I get so confused on what foods to eat because I'm told high fiber but then told high fiber can be bad. I tried the Whole 30 food plan and felt decent but no help with the constipation and still didn't feel great. I've read low carb isn't good because you need the fiber. I've tried fiber supplements, magnesium, probiotics/prebiotics, digestive enzymes when I eat, laxatives. Of course, laxatives work if I take enough but I know that's not good so I try not to. I just don't know what to try anymore.

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