Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for researchmaven @researchmaven

Hi debschmitt, I have all those things too, except the diverticuli I was diagnosed with in my 30s seem to have closed. I live a near-normal life by controlling my food choices and working on my anxiety. Both trigger IBS-C and the severe redundant colon I have doesn't help. I am 68 and active.

Through trial and error I eat zero grain, zero FODMAP, Zero meat, etc. I am almost halfway through with hypnosis therapy to lessen my anxiety as an IBS-trigger. Mineral oil is my laxative of choice. I am trying magnesium as a regular supplement to prevent constipation. See attached for more details. I really believe changing what is going on in your head and what you are putting in your gut is the best solution (for me so far).

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Thanks for the attachment. I follow a similar diet, but you gave me some new ideas:)

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Profile picture for cipnsue @cipnsue

Thanks for the attachment. I follow a similar diet, but you gave me some new ideas:)

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Yes, been dealing with it for a year, and added with that, I am diagnosed of gastroparesis. My intake of food has changed. Learned to take everything slow.

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Yes I have . I’m 73 .it’s difficult to deal with.
Different laxative works for several weeks then suddenly stops and I try something else….
I would love to have it shortened surgically but I think it may be risky. The bloating and constipation is very uncomfortable.

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Yes, and I'm scheduled for another Endoscopy and Colonoscopy of 08.28.23 if I can find someone to take me. The person who is supposed to take me might not be able as her brother just had a heart attack. I get pre-cancerous polyps and also have AVM's in my colon, and esophagus and don't know if they are anyplace else. I'm sick of feeling sick and I'll be 82, and have had to have these colonoscopies since I turned 44. Colon Cancer runs in the family. They get stuck in two places when doing colonoscopy and the last one I had in 2021 they couldn't get to the ilium don't know that is spelled right. I'm tired of trying to find out what is wrong with me.

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Profile picture for curiousgirl @curiousgirl

Please tell me if I'm wrong but I thought a redundant colon was something you're born with.
I never knew I had one until my first colonoscopy.

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It can be genetic or it can be caused by chronic constipation which stretches the colon, makes is longer, so it creates loops and turns to fix inside the space it has. Easier to become constipated. You may never know you have it, or like those of us sharing here, you find out from a colonoscopy that was difficult or impossible to complete. And even then it may not be causing problems, but one day it just might change your life. And then you have to find out what works for you, to keep things moving regularly. Just my experience.

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Thank you for clarifying that. I have had bouts of constipation but usually from something
I've eaten. I take psyllium every night and that has kept me regular. Hope it stays that way.
I have a friend who was constipated for a week and had to have emergency surgery and had
quite a bit of her colon removed. (she had a redundant colon).

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I found this group as I googled “ how to increase colon transit in redundant colon”. I have been struggling with constipation since childhood. Few years back , had a CT colonography that showed redundant colon. I used to think I have IBS, redundant colon seemed a better diagnosis. I manage it by eating fiber foods, wheat bread, fruits, vegetables, decreased meat, try to drink enough water but forget, FODMAPs are not good. My problem is that it takes me an hour or more in the morning (sometimes 2-3 shorter bathroom trips) to empty my bowel. I want to be done in 10-15 minutes, I’m a fast pace person ( only thing slow about me is my colon) I do thank God that my problem is manageable ( read other people’s miseries) never needed to go to ER. But I’m a physician myself so maybe I don’t get alarmed as easily as others. My 3 siblings have same problem, so probably hereditary. Just found this medicine called Motegrity that can be used although it’s very expensive and has depression as a side effect , so not going to take it. I figured a while ago that laxatives are not a good solution. The right kind of foods - some fiber , water, a low stress life, physical activity- has made this liveable for me. If I find better solutions, I’ll share. Good luck !

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Profile picture for marmoldav @marmoldav

I really truly think the squatty potty (Squatty Potty Simple Bathroom Toilet Stool, White, 7" https://a.co/d/gCayJas) helps so much. The normal persons colon needs help getting in to the right position so people with extra colon really need help getting it in the right position and this is the thing to do it. If you're out and about, at restaurant or someone's house, look for something about the same height to use, a bathroom waste can usually works. You're already doing anything else I can think of suggesting.

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I agree. I used to think they were just a scam. But now I love it. It makes so much sense.

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My GI said that in observational studies have proven that it matters not whether you consume nuts & seeds- in fact the more fiber the better!I would think it’s purely individual- for me I consume a LOT of fiber and drink the 64 ounces of water. I take a capful of miralax every morning, one or two taps of Jerusalem artichoke powder a day in a liquid, whole grains legumes fruit, no meat- ground flaxseed every morning in cereal, - it all -Works for me! After two coffees in the morning I start on the water- I don’t leave the house until I’ve moved my bowels! This regimen- works. Hope I’ve been helpful with this advice.

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I’ve found out this year about having a redundant colon. This is very traumatic for me. I’m usually sick the majority of the time dealing with constipation. The pain of bowel movement of any kind is truly torturous in every aspect of the condition. I’m needing a doctor that has the patience to listen and understand that I need help daily. Not just from meal to meal, but the entire digestive process, of which is painful to endure constantly.

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