Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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@sallyw133

I thought same. Gi only told me no fiber supplements. Dietician said high fiber and fibrous foods are difficult to digest so tend to move slowly and get caught up in kinks and loops. I’ve found I do feel less “packed”. However, still having problem getting things to move. Mineral oil does help but not sure about using it frequently. I’m trying to avoid using Motegrity as I have to
go on SS at the end of year and too expensive. So I’m experimenting to find alternatives before then. Have a virtual visit with dietician in morning, so hoping for more advice from her.

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@sallyw133 😊 I am so grateful for your post about eating LOW fiber foods with a tortuous colon. It totally makes sense! I currently take Benefiber in the morning, Metamucil at lunch and eat oatmeal, raw fruit, etc. I didn't realize I was adding to my problems until I read your fabulous post. Your knowledge has been very helpful to me! Please keep me (us) posted after your morning virtual appointment with your dietitian and share whatever wonderful additional tips you learn! I heard that Motegrity can be kind of pricey so it would be nice if we could improve our situation with diet and something over the counter like Senokot S or Colace, etc. I wonder if fish oil or olive oil would work better than mineral oil as a lubricant. I saw a post about coconut oil as a possibility too. Thank you again for sharing what you have learned. You opened my eyes to a low fiber diet and I will definitely try it to see if there is some improvement. I don't expect a miracle, but it may be a step in the right direction!

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@notmoff

@hello1234 - Thinking it over, I think my problem was that because of osteoporosis and concern about heart disease, I have very little salt in my now mostly entirely home cooked plant diet. Plus I took the 1 - Senna S per day she recommended PLUS Miralax in addition. I hadn't even reached the 2 liter/day of water that she recommended.

Currently my doctor suggests I not use Miralax at all and up to 2 Senna-S and 2 - 100 mg docusate sodium stool softeners per day, as needed. I'm experimenting with just the stool softeners to see how it goes.
Do you you know what contributed to your need for your saline iv?

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H @notmoff
Yes. Unfortunately, I do know exactly what contributed to my low sodium blood test. My doctor was taking monthly blood tests to track my creatinine level as I started to go into kidney failure. I discovered that hydration helped the creatinine level result, so I made sure to be well hydrated before the blood test. Unfortunately, because I was scared to death of a kidney failure result at 59 years old, I drank too much water over a 5 day period. My doctor sent me to the ER for saline IVs after reading my blood test results. I didn't know if you drink too much water you can end up in the hospital! It was a definite learning experience on the importance of moderation in all things. Fast forward, I am now a new successful kidney transplant recepient and doing wonderfully! ❤
Bottom line, don't overdo the water and don't overdo the no salt diet. Your body needs sodium to function properly, including your heart. (Just don't add a lot of unnecessary salt to your cooking). That's the lesson I learned in the hospital during the saline IV treatments. 😊

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@sickofbeinsick1

Well I’m another you can add to your list…my colon, I’m quoting from colonoscopy from 2018;
The colonoscopy was technically difficult and complex due to restricted mobility of colon, a redundant colon, significant looping & tortuous colon. Many
small & large mouthed diverticula found in sigmoid, descending & transverse colon. And of course, let’s not forget hemorrhoids (internal)…what am I supposed to do with all this info? They diagnose but don’t give any treatment, except “avoid constipation”.
Also, come back for another colonoscopy in 5 years..which I did, with the same results

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Hi @sickofbeinsick1 😊
Wow, it sounds like your gastro doc added everything but the kitchen sick on your colonoscopy results! Do you feel okay or do you have symptoms? Do you have problems with constipation or so far, so good?

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My gi said that olive oil is also an option. I’ve just found it less appealing to take on its own. I’m going to ask her about coconut oil.

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@hello1234

H @notmoff
Yes. Unfortunately, I do know exactly what contributed to my low sodium blood test. My doctor was taking monthly blood tests to track my creatinine level as I started to go into kidney failure. I discovered that hydration helped the creatinine level result, so I made sure to be well hydrated before the blood test. Unfortunately, because I was scared to death of a kidney failure result at 59 years old, I drank too much water over a 5 day period. My doctor sent me to the ER for saline IVs after reading my blood test results. I didn't know if you drink too much water you can end up in the hospital! It was a definite learning experience on the importance of moderation in all things. Fast forward, I am now a new successful kidney transplant recepient and doing wonderfully! ❤
Bottom line, don't overdo the water and don't overdo the no salt diet. Your body needs sodium to function properly, including your heart. (Just don't add a lot of unnecessary salt to your cooking). That's the lesson I learned in the hospital during the saline IV treatments. 😊

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@hello1234 - So glad to hear you got your successful kidney transplant and all is well!
Thank you for the good
advice about not overdoing water and salt intake. With my taste for salt now replaced by homemade citrusy sauces, my concern is that any salt feels like too much. Time to re-calibrate and balance it against the osteoporosis issue.
The World Health Organization, the Centers for Disease Control and Prevention, and American Heart Association all recommend keeping sodium under 2,300 milligrams (mg) per day. The Institute of Medicine (IOM) suggests aiming for about 1,500 mg per day.

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@notmoff

@hello1234 - So glad to hear you got your successful kidney transplant and all is well!
Thank you for the good
advice about not overdoing water and salt intake. With my taste for salt now replaced by homemade citrusy sauces, my concern is that any salt feels like too much. Time to re-calibrate and balance it against the osteoporosis issue.
The World Health Organization, the Centers for Disease Control and Prevention, and American Heart Association all recommend keeping sodium under 2,300 milligrams (mg) per day. The Institute of Medicine (IOM) suggests aiming for about 1,500 mg per day.

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Excellent information @notmoff regarding the daily salt intake recommendations! 😊 Your homemade sauces sound delicious on chicken and fish. Regarding your osteoporosis, have you started taking a medication or are you attempting to turn things around with diet and exercise only? After years of kidney disease, I also have osteoporosis. I am thinking about starting Prolia, but I am not excited as about the possible side effects.

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@hello1234

Excellent information @notmoff regarding the daily salt intake recommendations! 😊 Your homemade sauces sound delicious on chicken and fish. Regarding your osteoporosis, have you started taking a medication or are you attempting to turn things around with diet and exercise only? After years of kidney disease, I also have osteoporosis. I am thinking about starting Prolia, but I am not excited as about the possible side effects.

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Sorry to hear you have osteoporosis also.
I decided on diet and exercise instead of bisphosphonates because I understood they decrease bone resorption (?) but not fractures. My choice may be why I had a recent worsening of a spinal compression fracture that generated my internist's suggestion to start using senna and docusate regularly.
Diet change involved my reducing salt intake, increasing calcium through supplements and more greens, then less meat and now NO meat or dairy. So my non-salty sauces based on citrus and vinegar are used with sweet potatoes, lentils and other beans.
I understand your hesitancy about Prolia. These are difficult choices.

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@notmoff

Sorry to hear you have osteoporosis also.
I decided on diet and exercise instead of bisphosphonates because I understood they decrease bone resorption (?) but not fractures. My choice may be why I had a recent worsening of a spinal compression fracture that generated my internist's suggestion to start using senna and docusate regularly.
Diet change involved my reducing salt intake, increasing calcium through supplements and more greens, then less meat and now NO meat or dairy. So my non-salty sauces based on citrus and vinegar are used with sweet potatoes, lentils and other beans.
I understand your hesitancy about Prolia. These are difficult choices.

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Hi @notmoff 😊
Did your internist say NO dairy? I eat dairy every day with all my meals in hope of reaching my daily intake of calcium for my osteoporosis. I heard it's better for us to reach our calcium goal with food rather than taking supplements Why no meat and no dairy? Your diet with lentils, sweet potatoes, greens sounds very healthy, but I curious about all the restrictions.

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@hello1234

Hi @notmoff 😊
Did your internist say NO dairy? I eat dairy every day with all my meals in hope of reaching my daily intake of calcium for my osteoporosis. I heard it's better for us to reach our calcium goal with food rather than taking supplements Why no meat and no dairy? Your diet with lentils, sweet potatoes, greens sounds very healthy, but I curious about all the restrictions.

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Although my internist is a vegan, she did not advise I omit dairy, nor meat. I chose her because she was communicative, pleasant, recommended and she was familiar with dietary and lifestyle issues.
My limited family history indicates a strong risk of heart disease and cancer, * research shows both are considerably reduced on a vegan diet, so I decided on my own to adopt it.
With the variety of plant foods available, it doesn't feel restrictive although I do still salivate when I smell my downstairs neighbors frying meat!
I am still learning through trial and error. * My admittedly limited research: Books & Youtube videos by Dean Sherzai, Will Bulsiewicz, Caldwell Esselstyn , John McDougall, & Robynn Chutkan.
As a retired person with limited means in a limited health care system, I'm stumbling around for answers as are most of the people in this group.
Can you recommend reliable sources of information?

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Hi @notmoff 😊
I agree with you about minimizing red meat in your diet to optimize your heart health and to prevent cancer. However, I also believe an occasional piece of lean meat has the benefits of iron, an excellent protein source, protein is good for bones, etc. I am stumbling around to find answers too. My philosophy has been to try to aim for a "little bit of everything" in moderation. I try to "eat the rainbow" (greens, sweet potatoes, carrots, beets, etc), I try to eat a little fish but try to avoid too much mercury, I try to eat a little bit of meat but try to avoid fatty cuts and antibiotics, etc. It's difficult to navigate food choices because everything has a ying and a yang. It's like my saline IV situation. I thought I was hydrating my kidneys, but I was actually doing great damage to my body and brain by over drinking the water. So, I try to do a little for each part of my body. My bones like dairy, my kidneys like moderate levels of water, my skin likes greens, potassium levels like a banana, etc. I think you and I ...and everyone on Connect are discussing options because there are no clear answers, that's why I like to hedge my bet! Let's keep sharing whatever we discover along the way! ❤

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