reducing prednisolone once you get down to 5mg

Posted by dam67 @dam67, Feb 5, 2024

My husbands consultant has told him that once he gets down to 5mg he can have a test to see if his adrenal gland is kicking in. If so he can put him on a different drug that is kinder to the body. Has anyone else had this experience.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Profile picture for mezack25 @mezack25

Looking for some input. Went from 15mg to 10 pred. Then down 1mg per 3 weeks to 5mg. I was ok at 5 went to 4 started with pain and now at 3 I just can’t take the mornings pain . The Rheumatologist thought a flare but the numbers haven’t moved and are low. Told me to split the 3 to 1.5 am then pm. 12 hrs. apart. No change. I asked to go up to 5mg. Today is the 3rd day on 5 and not feeling change. Should I go up on the dose? I hate to as I have osteoporosis. He thinks there could be something underlying and have more bloodwork scheduled.
May will be a year on pred and diagnosis. I’m frustrated to say the least and the morning pain is awful. Holding me back from my working out and exercise. I continue walking but want more and can’t right now. And help will be greatly appreciated.

Jump to this post

@mezack25
I’m in the same boat. On pred since end of last March 2025, as I’ve dropped I got to 3 mgs a few months ago and pains increased. Rheumy bumped it back to 4 mg. I took a long walk a few days ago & everything felt fine. It was great & I felt so happy. Next day nope. All around hips & glutes lower back all angry. Now, each day has gotten better except for that lower right side back pain. I just gotta wonder if there’s some nerve pressure from that spine. I do have osteoporosis.
I don’t know how to strengthen my glutes hips when I always experience pain! I do stretches as recommended by a chiro & PT from last year’s discovery of PMR. And I try to walk a few miles everyday. Frustrated!!

REPLY
Profile picture for kare1 @kare1

@mezack25
I’m in the same boat. On pred since end of last March 2025, as I’ve dropped I got to 3 mgs a few months ago and pains increased. Rheumy bumped it back to 4 mg. I took a long walk a few days ago & everything felt fine. It was great & I felt so happy. Next day nope. All around hips & glutes lower back all angry. Now, each day has gotten better except for that lower right side back pain. I just gotta wonder if there’s some nerve pressure from that spine. I do have osteoporosis.
I don’t know how to strengthen my glutes hips when I always experience pain! I do stretches as recommended by a chiro & PT from last year’s discovery of PMR. And I try to walk a few miles everyday. Frustrated!!

Jump to this post

@kare1959
Check out Jeff 97s response. Makes sense to me. I’m going to send my Rheumy an email based off his response. This site has been wonderful and so very helpful. This PMR truly sucks!!! Hang in there

REPLY

I'm a 68 year old woman that was diagnosed with PMR. I have been on Prednisone for 1 year and 6 months. I was down to 4 mg of Prednisone daily and feeling great, then I experienced a PMR flare. Now I'm at 6 mg of P and was so upset that I was going in the wrong direction with my treatment.

REPLY
Profile picture for brandon03291957 @brandon03291957

I'm a 68 year old woman that was diagnosed with PMR. I have been on Prednisone for 1 year and 6 months. I was down to 4 mg of Prednisone daily and feeling great, then I experienced a PMR flare. Now I'm at 6 mg of P and was so upset that I was going in the wrong direction with my treatment.

Jump to this post

@brandon03291957 what was your taper amount and time schedule when you were at 4mg?

REPLY

I went from 5 mg to 4 mg and was at 4 mg for 9 days and then my muscles in my arms and hips started to hurt.

REPLY
Profile picture for brandon03291957 @brandon03291957

I went from 5 mg to 4 mg and was at 4 mg for 9 days and then my muscles in my arms and hips started to hurt.

Jump to this post

@brandon03291957
Check with Dr,
My Dr. gave me this……
Go back to pain free level 5, pain free for 2 - 3 wks. Then try alternate taper,
Day 1 -5, day 2-4, day 3-5, day 4-4 etc….for 2-4 wks if no pain, then drop to 4.
Alternate method is a dose of 4.5….not so steep a drop.

REPLY
Please sign in or register to post a reply.