Recurring shingles
I have had shingles on the right side of my right knee...7 times in the last 2 years. I am sure this is not normal. Buy my doctor does not seem too concerned. I am concerned due to the continued zinger nerve pain that I have in that spot all of the time now. Also, I have been previously diagnosed with epstein barr virus and chronic fatigue syndrome so when the shingles hits me; I feel so irritable and miserable. It makes my chronic fatigue flare up and I just have to let everything run its course. My doctor gives me a stand-by prescription of an antiviral medicine to help shorten the shingles cycle. Can someone help me figure out why this is happening. Should I find another doctor? Should I just press the issue more with my current doctor?
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@seniormed
No, I have not. Due to my insurance, I have to have a referral to see the dermatologist. And my doctor does not think this is the way to go.
@strongfightingmom --- I do keep a Famvir script with me at all times so, like you, as soon as I recognize the symptoms, I start taking the med. I even carry the script with me on vacation. Lack of sleep and stress are triggers, but so is direct sunlight. Since this happens on my forehead, I always wear a cap during the daytime. I have read about that tiny % of the population who suffer with this but until I found this thread, I had never read stories directly from another sufferer. Great to finally read of others who know what this is like!
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If it is viral cultured and found to be recurrent Herpes simplex then you are most likely to be contagious in the day before and
with outbreaks. The treatment is about the same but make sore it is covered.
Make sure it is covered to avoid spreading it to contacts.
@seniormed -- It was cultured and, yes, it is Zoster, not Simplex. I stay away from kids and senior adults because I know that I'm still contagious to those who've never had chicken pox or received the vaccination. When the dr first told me direct sunlight is a trigger, I thought he was crazy, but it's true. I have to be really careful because the hot sun (hot sun as in inferno Atlanta, GA, direct sun) and within a few minutes, I can feel the tingling and know what is going to be my lot for the next couple of weeks. You're right that the treatment is the same and I always make it a point to tell every new pharmacist that the Famvir is for =shingles=.
Have you tried taking Lysine as soon as you feel the tingling? It works for me rather quickly and seems to stop viral replication.
@vostie ... Have not taken Lysine but that sounds like something I need to try. And if it can also reduce stress, them it's a win-win.
@sdumas0001 ,
I have had both vaccines for shingles. It only made my episodes more frequent and worse. If you google information you will find this has been reported many times. I also had a painful reaction to the Shingrex vac. I do not recommend these vaccines. Keep your immune system strong. That is your best bet.
@1fancydancer, I had both vaccines and it only made shingles worse and more frequent. I do not recommend these vaccines It is best to keep your immune system strong. Others are reporting similar results. If you search on the internet you can find these results. I do appreciate the pharm industry trying to help find help against shingles. It does not always work.
It’s more likely herpes simplex(Fever blister virus) shingles is also a herpes virus called herpes zoster. HSV recurs in the same area repeatedly since it goes dormant in a nerve root. Usually more of a cluster of lesions than a dermatome (following the length of an entire nerve) It can also have some odd sensations after it clears. Take photos when it happens and see a dermatologist.
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