Recurrent urinary tract infections (UTI)

Posted by mpeters @mpeters, Feb 19, 2018

I have had four uti’s in the last eight months. Of those eight, I had three in three months. I’m wondering if I should see a specialist. I like my primary care provider but he is very busy. Also, if you know of anything I can be doing until my next appointment with my primary care provider, which is three months away.

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@kanaazpereira

Hi @mpeters,

I can imagine how frustrating it must be to cope with recurrent UTIs! I'd like to add some basic information from Mayo Clinic, about urinary tract infections:
http://www.mayoclinic.org/diseases-conditions/urinary-tract-infection/basics/causes/con-20037892

We have these discussions on Connect that you may wish to view:
– Bladder surgery https://connect.mayoclinic.org/discussion/bladder-surgery/
– UTI and Kidney function. https://connect.mayoclinic.org/discussion/uti-and-kidney-function/

I'd also like to invite @pizon @victoryohvictory @smartchick43 to share their insights, as they've all posted about recurrent UTIs on Connect. @mpeters, how are you managing your symptoms at present?

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Also, I drink a glass of Keifer every day. I have been doing this for two years.

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@kanaazpereira

Hi @mpeters,

I can imagine how frustrating it must be to cope with recurrent UTIs! I'd like to add some basic information from Mayo Clinic, about urinary tract infections:
http://www.mayoclinic.org/diseases-conditions/urinary-tract-infection/basics/causes/con-20037892

We have these discussions on Connect that you may wish to view:
– Bladder surgery https://connect.mayoclinic.org/discussion/bladder-surgery/
– UTI and Kidney function. https://connect.mayoclinic.org/discussion/uti-and-kidney-function/

I'd also like to invite @pizon @victoryohvictory @smartchick43 to share their insights, as they've all posted about recurrent UTIs on Connect. @mpeters, how are you managing your symptoms at present?

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@mpeters, That is good. Your nurse practitioner (NP) is fully capable to help you. I think that if you have any problems between now and your appointment in April, that you could contact your NP.
Rosemary

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Just saw an infectious disease doc at Penn for similar problem. Mine got so bad that I went into septic shock one time and ended in the ICU and the others became sepsis. Apparently I have a colonization of ecology iin either my bladder or ureathea. No decision of continuing treatment until my other docs give their opinions due to other issues.

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@renarikiw

Just saw an infectious disease doc at Penn for similar problem. Mine got so bad that I went into septic shock one time and ended in the ICU and the others became sepsis. Apparently I have a colonization of ecology iin either my bladder or ureathea. No decision of continuing treatment until my other docs give their opinions due to other issues.

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@renarikiw, Thank you for sharing in this discussion. That has to have been quite a painful and frightening experience for you. It sounds promising for you that your doctor has found what is causing it.
I have experienced several uti's that were relatively minor, in comparison. I never had any until after my transplant and my required immunosuppresant medications which weaken my immune system.

How long have you been suffering with these recurring infections?
And how did you get referred to an infectious disease doctor?
Rosemary

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@renarikiw

Just saw an infectious disease doc at Penn for similar problem. Mine got so bad that I went into septic shock one time and ended in the ICU and the others became sepsis. Apparently I have a colonization of ecology iin either my bladder or ureathea. No decision of continuing treatment until my other docs give their opinions due to other issues.

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I am so sorry to read that your uti’s got so bad. I’m glad to hear you have a team of doctors involved in your care. Please write soon and update us on how you are doing. I have the same question that Rosemary has. How did you get referred to an infectious disease specialist? Thanks for posting. Hopefully we can all help each other.

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@renarikiw

Just saw an infectious disease doc at Penn for similar problem. Mine got so bad that I went into septic shock one time and ended in the ICU and the others became sepsis. Apparently I have a colonization of ecology iin either my bladder or ureathea. No decision of continuing treatment until my other docs give their opinions due to other issues.

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@mpeters,, It is good to hear from you. Last time we talked, you were in the midst of deciding how to manage until your April appointment. Have you learned anything that has been helpful? How are you doing?
Rosemary

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@renarikiw

Just saw an infectious disease doc at Penn for similar problem. Mine got so bad that I went into septic shock one time and ended in the ICU and the others became sepsis. Apparently I have a colonization of ecology iin either my bladder or ureathea. No decision of continuing treatment until my other docs give their opinions due to other issues.

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No new uti’s, thankfully, but I do often feel some heat in that area so perhaps it is still there. Thanks for asking and I will post again after my visit with the specialist at Mayo on April 25.

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I have been taking d-mannose 500mg powder for 2 years for my urinary track infections and it has done well. Except recently I had a infection which I went to the ER for. I am wondering if my system is now immune to d-mannose and I need something stronger? Anyone has suggestions. D-mannose also comes in capsile form should I switch is there now something more effective?

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Welcome back, @safetyshield!
You may notice that I moved your discussion and combined it with this existing discussion on urinary tract infections. I did this as I thought it might be beneficial for you to connect with a few members may have more insights to share.

I'm tagging @pizon @kareniowa @bearylynn @ksey @jmaa and @predictable – you may have connected with some of them, previously – to see if they could offer more information on D-mannose.
I also thought you might be interested in reading this 2017 article about, "Executive summary of the diagnosis and treatment of urinary tract infection..."
https://www.sciencedirect.com/science/article/pii/S2529993X17301120

@safetyshield, may I ask if you've talked to your urologist about the recent UTI?

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