1. < Transplants

Recurrent Liver Cancer After Liver Transplant

Posted by suzy212 @suzy212, Jun 17, 2022

I was wondering if anyone has gotten liver cancer HCC back after transplant and what treatments they received .My husband has recurrence 6 months after transplant hcc in only 1 lymph node in the gastro hepatic ligament .Weve read the only true cure is resection and removal of all those nodes .We are scheduled for surgery soon. Can anyone tell me what treatments they received due to already being on immunosuppressive Thank you

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revjohnson | @revjohnson | 4 days ago
In reply to @colleenyoung "@revjohnson, I'm tagging @karenhileman to make sure she sees your questions to her. @revjohnson, how are..." + (show)
@colleenyoung

@revjohnson, I'm tagging @karenhileman to make sure she sees your questions to her.

@revjohnson, how are you doing on Lenvima so far?

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It's pretty rough. Been dealing with stomach pain and fatigue. Taking some meds for the pain. Hopefully it will get better. Thanks for asking.

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revjohnson | @revjohnson | 4 days ago
In reply to @colleenyoung "@revjohnson, I'm tagging @karenhileman to make sure she sees your questions to her. @revjohnson, how are..." + (show)
@colleenyoung

@revjohnson, I'm tagging @karenhileman to make sure she sees your questions to her.

@revjohnson, how are you doing on Lenvima so far?

Jump to this post

Thanks Coleen!

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Moderator
Colleen Young, Connect Director | @colleenyoung | 5 days ago
In reply to @revjohnson "Hi Karen: I started taking Lenvima last week (6/5/24) after I developed a resistance to immunotherapy...." + (show)
@revjohnson

Hi Karen:
I started taking Lenvima last week (6/5/24) after I developed a resistance to immunotherapy. How has the Lenvima treatment been for you? Also I had y-90 treatment on a primary tumor last November. It works well. Thanks.

Jump to this post

@revjohnson, I'm tagging @karenhileman to make sure she sees your questions to her.

@revjohnson, how are you doing on Lenvima so far?

REPLY
2 replies
revjohnson | @revjohnson | Jun 12 12:18pm
In reply to @karenhileman "Just diagnosed HCC 1 year post transplant early stage scared of course Y-90 soon and already..." + (show)
@karenhileman

Just diagnosed HCC 1 year post transplant early stage scared of course Y-90 soon and already started Levinma. Has anyone else been on Levinma?

Jump to this post

Hi Karen:
I started taking Lenvima last week (6/5/24) after I developed a resistance to immunotherapy. How has the Lenvima treatment been for you? Also I had y-90 treatment on a primary tumor last November. It works well. Thanks.

REPLY
1 reply
karenhileman | @karenhileman | Mar 15 11:16pm
In reply to @karenhileman "I am feeling well better than I have felt in a couple years." + (show)
@karenhileman

I am feeling well better than I have felt in a couple years.

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That’s great to hear. I’m sure you will continue to do well. Best Wishes!

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karenhileman | @karenhileman | Feb 27 12:18am
In reply to @karenhileman "I am doing fine. I have not been experiencing side effects so far no nausea or..." + (show)
@karenhileman

I am doing fine. I have not been experiencing side effects so far no nausea or diarrhea or body pain. I am not experiencing too much fatigue. The only side effect I have had is elevated blood pressure which is being addressed by increasing blood pressure medication. All my blood work including liver readings are all normal.

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I am feeling well better than I have felt in a couple years.

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1 reply
karenhileman | @karenhileman | Feb 27 12:16am
In reply to @colleenyoung "Welcome, @karenhileman. That's a hard blow to get liver cancer after transplant. As you can see,..." + (show)
@colleenyoung

Welcome, @karenhileman. That's a hard blow to get liver cancer after transplant. As you can see, you're not alone. I'm tagging @suzy212 @arqui02000 @eparker6 @parrot53, and @jackie421blfdgurl to join this discussion.

@nang's husband took lenvatinib (Lenvima) for kidney cancer and can share experiences with you.

Here's a related discussion to also check out:
- Y-90 liver cancer treatment https://connect.mayoclinic.org/discussion/y-90-liver-cancer-treatment/

Karen, how are you doing on Lenvima? How are you doing generally?

Jump to this post

I am doing fine. I have not been experiencing side effects so far no nausea or diarrhea or body pain. I am not experiencing too much fatigue. The only side effect I have had is elevated blood pressure which is being addressed by increasing blood pressure medication. All my blood work including liver readings are all normal.

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 26 12:32pm
In reply to @karenhileman "Just diagnosed HCC 1 year post transplant early stage scared of course Y-90 soon and already..." + (show)
@karenhileman

Just diagnosed HCC 1 year post transplant early stage scared of course Y-90 soon and already started Levinma. Has anyone else been on Levinma?

Jump to this post

Welcome, @karenhileman. That's a hard blow to get liver cancer after transplant. As you can see, you're not alone. I'm tagging @suzy212 @arqui02000 @eparker6 @parrot53, and @jackie421blfdgurl to join this discussion.

@nang's husband took lenvatinib (Lenvima) for kidney cancer and can share experiences with you.

Here's a related discussion to also check out:
- Y-90 liver cancer treatment https://connect.mayoclinic.org/discussion/y-90-liver-cancer-treatment/

Karen, how are you doing on Lenvima? How are you doing generally?

REPLY
1 reply
karenhileman | @karenhileman | Feb 21 4:52pm

Just diagnosed HCC 1 year post transplant early stage scared of course Y-90 soon and already started Levinma. Has anyone else been on Levinma?

REPLY
2 replies
jackie421blfdgurl | @jackie421blfdgurl | Nov 21, 2022
In reply to @jackie421blfdgurl "I was aware my liver team had experience with this they are all in dedicated and..." + (show)
@jackie421blfdgurl

I was aware my liver team had experience with this they are all in dedicated and smart group of medical staff
They are at mt.sinai in New York Madison and 98 th street

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P.s. liver floor 12th.

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