RECOVER-VITAL Screening Visit Set

Now I’m a little embarrassed. You have had such a time! However bad we feel, somebody else is having it worse I guess.

As I read your symptoms, I was reminded of a few things that had subsided. I also had the red flushed face. My doctor thought perhaps Mast Cell activation, but it seems to have quieted down. I had vitamin C infusions which may have helped that some. Also, the back rash cleared.

AND, if you feel a little better, maybe I will too? I sure hope you get some help at the clinic in NC.
I will try to keep hope alive.❤️

Don’t be embarrassed. Every case is different. I also had an existing autoimmune condition. I’m so glad your rashes are better! I have periods of reduced fatigue and dizziness, so you might too. I rarely get shortness of breath anymore. None of us know the endgame but I’m better off now than six months ago! I’m not the only one either! Don’t give up!

Great finds, thank you! These studies are very helpful and encouraging. I agree, there are parallels to the HIV/AIDS crisis. It it hard to imagine now, however how very stigmatised that whole disease was initially and how hard they had to fight. It also took some leading figures outside the community to advance matters. I guess once mere survival of Covid was possible with the vaccines and meds in the acute stages the attention waned - also everyone is so tired of it. But LC is moving at a much faster pace when it comes to recognition by the WHO, and official bodies than previous diseases. It it true however, that conventional medicine as it's taught and those practising it has some way to go, especially in learning new ways of dealing with (female) patients.

I find it disappointing that the pharmaceutical industry isn't doing much in terms of research. I haven't heard that Pfizer are looking into Paxlovid to treat LC.

I, too know how you feel. All of the above doesn't give us much comfort when you're losing years of your life to LC...

I suspect Pfizer is one of the entities providing funding to NIH for the RECOVER-VITAL Paxlovid Study. None of this has been disclosed that I know of except, in February, the Biden administration gave over 500 million to NIH specifically the RECOVER initiative.

Paxlovid is not experimental in the treatment of acute infection:

The purpose of the RECOVER-VITAL trial is to determine Paxlovid’s efficacy (if any) in the treatment of Post Acute Covid Syndrome, which we all have here.

Thanks for volunteering to try this.

I volunteered eagerly because I, like many others, have been desperately ill for over three years and my life is completely destroyed. If people don’t volunteer to try new treatments, there will be no treatments. We should all have a positive and encouraging attitude toward any new research, not negative.

I am also very ill and that is why I am here. But I don’t believe we all SHOULD do anything. Everyone is flying blind and trying to figure this out from doctors to patients and my experience has been that even the doctors I’ve seen will argue about what the last doctor’s approach was and believe their course of action is superior to or more insightful than the last. I genuinely applaud your courage in trying this, although it is not a pathway I would take. And I sincerely hope you get relief and answers like we all need. There are many pathways and only through different pathways can we rule out what works and what doesn’t. So thank you for your contribution to this end goal for all of us

My wife just started this study. It's 25 days of Paxlovid, or 15, or 10, or 25 days of placebo.
She is on day 4
(Tucson, AZ)

I really hope it helps her!