Does anyone have a solution to help manage Reclast side effects?

@horserider79 I would definitely question it before going on it especially since you have other problems. I have been on a number of osteoporosis drugs over the last 10 or so years and I had three class for the first time a few months ago and had a lot of problems. Very sick, pain and I know I'm not going to get it again. I don't know if that's of any help but that was my experience. Jaynedanco

I had the same side effects. Several times I thought I was going to die. I hurt all over as well, but never got dizzy. I am functional,but I know I would be better had I not had Reclast!
I ordered chlorophyll. It is mint flavored. Mix with water and drink. It cleans cells and works on whole body. I use a heating pad often. I had my infusion about three years ago. It was a poison to my body and I will never take it again.

my reply disappeared before I finished but won’t repeat will just say— couldn’t sleep night after Reclast infusion, heart beat at 137,,sweating, miserable, Next afternoon went to ED — heart still in tachycardia , now in AFib
also It was terrifying. Got hydration AV and they did all kinds of tests. Sent me home after afib calmed. PA in endo office says never heard of Reclast causing that

@heartfelt70 can you cite your statement that bones after bisphosphonates are "like chalk" and "crumble"? It is commonly known that bisphosphonates should not be taken for more than 3-5 years, because bone density is increased by lowering bone turnover, so there is less or no new bone. But the incidence of femur fracture or jaw necrosis in that time frame is rare.

This mechanism for bone growth IS a reason to do an anabolic first!

I am curious how doctors make money when they give us meds. Sincere question. I am sure you are right but I would like to know the mechanism.

I am sorry you had an awful reaction. I have also had awful reactions to many meds. But some do fine with bisphosphonates and benefit. Those people tend not to post here because they have no reason to.

I am cautious and am doing low doses and apart from fever have done okay with it.

I was informed that once I start Prolia, I will be on it forever. 2 shots a year. No going back on Reclast as I reached the amount of infusions recommended.
I could take a drug holiday for one year but I rather not. Since I can only get DEXA test every 2 years, I don’t know if a drug holiday would make matters worse.

I won’t consider Evenity as it is a shot every month and my doctor saw better results with Prolia.

There is so much to consider and it is overwhelming to me. Fortunately, I have not experienced any fractures and I hope to keep it that way.

@dingus You are not alone! What they're afraid of, imo, is that we understand that they merely prescribe drugs according to what the sales rep and the literature from the pharmaceutical company (Big Pharma) tells them. They don't consider the side effects because they are told that they are "minimal." I would also venture to guess that they get financial support for prescribing the drug. I'm a retired RN, injured by Reclast and this is my opinion.

Agree with your comments re docs/remuneration and Big Pharma @lkhender - I have been prescribed oral meds, Reclast, Tymlos, and Evenity.

I had horrible (NOT minimal) problems with Tymlos, but none with Evenity or Reclast and I’ve had at least seven lifetime infusions of Reclast. I did not want to begin Prolia and appealed to my doc to have one more Reclast infusion instead. It’s important to know that it’s not a one-size-fits-all issue.

Even with my constant messages to the doc to complain about the debilitating issues I was having with Tymlos, he recommended PT, pain management, an endoscopy . . . I suppose because the adverse reactions I was having were not listed on the Radius website, they couldn’t be related to the med 🙂‍↔️. After finally telling the doc I was pretty much finished with Tymlos, I stopped the injections, my symptoms cleared up within days and I found a new doc!

I guess that’s part of the beauty of Tymlos: the med doesn’t stay in one’s system long term and once there is cessation, the reactions clear up quickly . . . so there is that! Reclast and Evenity last longer - to the point where there is much information dedicated to how long Reclast remains in the body. Btw, after contacting Radius, some of my odd symptoms were added to the published list; not sure why.

Stay sunny everyone! Listen to your gut and do what’s best for you. 🌞

Cheers!

About a month ago (how time flies) I had posted that I went to yet another Endocrinologist. We spoke briefly on the phone after the appointment, and I then read her comments on My Chart. On My Chart she mentioned that she recommended that I continue Reclast, but that I didn't want to because it made me dizzy. Ha!! What a joke!!! Dizziness was only one of thirteen side effects I am experiencing on Reclast. While at the appointment I tried to show her a list of all my side effects. She avoided taking the paper that I had so neatly prepared for her, and said we could talk about it again at my next appointment in DECEMBER!!! I was hoping to have some relief from these side effects well before December.
During our conversation I asked her if my bone density had gotten any better after I had the Reclast infusion. I had a bone density test on 1-17-23, Reclast on 2-21-23, and another bone density on 5-20-24. She said "no". It was one of those quick little "no" answers. It indicated to me that she hadn't really looked into it, or she didn't want to spend any more time with me. I have so many more thoughts, but I guess it's just time to find another doctor. All I know for sure is that I will never take Reclast again.

Windyshores, Trying to get this out to you and I just lost a couple of paragraphs. Trying again. I want to say first of all that I hadn't read anything regarding Reclast side effects when I started experiencing these pains etc. I had the infusion in February of 2023. The day after, I woke up with major pain in my shoulders. I've never had shoulder pain. It got better over the next couple of weeks. Then I started having excruciating pain in my right foot when I went from a sitting to a standing position. I called my PCP and told her I needed an x-ray because I thought my foot was broken. The x-ray showed nothing. Since then, the shoulder pain has subsided but the foot pain has come back about three times. It lasts about a week each time. Other side effects that I've had since the Reclast infusion are weak legs, swelling in feet, pain in legs, and toes (toe pain so bad I sometimes cannot sleep) numbness in my right leg, dizziness (serious dizziness) cold sweats, unable to regulate my body temperature, headaches. These all come and go. Thank goodness they don't all come at the same time. I've talked to several doctors of different persuasions, but no one can give me a good answer as to why I'm having these side effects (Of course, I'm convinced it's the Reclast due to the sequence of events), or, more importantly, how to fix the problems. It stays in your body for five years. Is this what I have to look forward to for the next three and a half years?? WindyShores or anyone, let me know if you have any questions.