Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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Profile picture for kaybollinger79 @kaybollinger79

@dannyandebbie Danny. I am doing acupuncture and it is helping some. Reclasp ruined my life for the last 3 months.

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@kaybollinger79 I hear you there! Now 16 months out and I feel like I have a very bad flu like symptoms, Aches and Pains mainly in my shoulders, arms and left foot. I go to physical therapy and recently had test done by my rheumatologist and waiting to hear her thoughts based on the test results. Honestly, I feel that there are many days I push myself as hard as I can and then a little more because I feel, I would rather be sore than not able to move at all. I did see an endocrinologist pharmacist who shared that the Reclast last about 18 months in one’s system, hopefully he is right and in a few months things will improve. The pain has changed, when it first came on, the day after the infusion I could hardly move either arm and it would wake me several times throughout the night; it has slowly changed to this constant pain and lameness. I will see if my VA health coverage covers acupuncture. My rheumatologist did put me on a dose of prednisone which did nothing for the shoulders and foot. I did get symptoms of a UTI that has left me with the feeling of constant burning in the bladder area which was / is the results of bladder cancer. Life often keeps one busy! Best of luck and thank you for your suggestions

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I was just diagnosed with Osteoporosis today and my doctor is wanting to start me on Reclast. She told me about the side effects and after reading these posts, I'm nervous. I also have Crohns and have Remicade infusions every 8 weeks, so I'm glad this is a yearly infusion.
I hope everyone is feeling well.

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