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reclast infusion

Posted by bmadewl @bmadewl, May 9 6:28am

Had my first reclast infusion in in February. It is now May and since then I have had lower back pain. I haven’t been able to work out at the gym as far as doing leg exercises because it seems to make it worse. I don’t know if this is a side effect or if it’s just something else has anybody had this issue?

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gbear | @gbear | Jun 20 12:04pm

So sorry you too had the bad reaction. I wish that I had seen this forum before I did that!
I think Reclast infusions are supposed to last a year. But like you, I’m not going to keep doing that!

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ladybugnc | @ladybugnc | Jun 20 4:35pm
In reply to @lkf109 "Has anyone heard of arm, wrist, and hand pain a few months after a reclast infusion?..." + (show)
Profile picture for lkf109 @lkf109

Has anyone heard of arm, wrist, and hand pain a few months after a reclast infusion? Aching is sometimes unbearable. Had X-rays, they were normal.
Would love to hear what the thought is. Thanks

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I have left arm pain and limited use of it. This was arm where infusion was applied. Exercise seems to help the pain but I still have limited distance in raising my arm and also reaching back to put on a jacket. Praying it gets better and doesn’t affect my right arm or any other part of my body.

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vagirl57 | @vagirl57 | Jun 21 9:36am
In reply to @kaki49 "I had mine last week and I thought I did fine, then on day 4, I..." + (show)
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I had mine last week and I thought I did fine, then on day 4, I had chills and extreme bone, joint and muscle pain. It’s day 8 post infusion and I am exhausted and have rotating joint pain. I already have arthritis, but this is arthritis of the worst ever. I’m supposed to take this again in 6 months, but can’t go through this again!

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Me too.

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ehjude | @ehjude | Jun 21 9:45am

I’ve had two Zolendronic acid (Reclast) infusions in the past two years with absolutely no side effects. The majority of people have minor or no side effects but will not post on this thread. Just here to give my experience.

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kathy9746 | @kathy9746 | Jun 21 10:49am

I did one reclast infusion years ago. The only side effect I had was diarrhea for a day.

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donnalee1977 | @donnalee1977 | Jun 21 11:32am
In reply to @ggrands "I sure could use some advice about the Reclast infusion. I have osteopenia, that has worsened..." + (show)
Profile picture for ggrands @ggrands

I sure could use some advice about the Reclast infusion.
I have osteopenia, that has worsened since my last scan. My doctor says my risk of fracture has increased (I recently had ankle surgery due to a fracture).
I am worried about the side effects that my doctor mentioned. A possible Broken jaw and or broken femur.
I am one of those people who have that rare side effect from medications.
She said if I do not have the infusion she would recommend a medically necessary bone density test in a year.
1. Is there anything I can do to increase my bone density without the Reclast?
2. Am I being foolish waiting?
3. Any advice?
4. Any alternative that might not be so dangerous?

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I have used a variety of products, methods and experience with the gastly bone growth stimulator drugs(injections), first off those drugs(Tymlos etc.,) should be avoided at all costs, the side effects were horrendous and benefits were minimal, weight lifting is beneficial but the MOST beneficial for me has been Citracal-which has improved my T score FAR MORE than any prescription medication or other method.
Good Luck

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hlp123 | @hlp123 | Jun 23 8:45am
In reply to @lkf109 "Has anyone heard of arm, wrist, and hand pain a few months after a reclast infusion?..." + (show)
Profile picture for lkf109 @lkf109

Has anyone heard of arm, wrist, and hand pain a few months after a reclast infusion? Aching is sometimes unbearable. Had X-rays, they were normal.
Would love to hear what the thought is. Thanks

Jump to this post

Yes ! You are not alone. I experienced the same pains in my joints and hands that you describe. The only explanation I get from my endocrinologist is that I have to "wade it out" and it will become less intense. Little comfort for those of us who are experiencing the pain.
Keep us posted on how you are feeling . Good Luck

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1 reply
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Michael Lavacot | @michaellavacot | Jun 24 12:38pm
In reply to @gbear "Try Prolia, which is a shot you get every six months. I had that for about..." + (show)
Profile picture for gbear @gbear

Try Prolia, which is a shot you get every six months. I had that for about
ten years with no side effects. But the doc said she thought I needed to
take a break from it, a “drug holiday”! I hope I can go back to that,
although the copay is very high.
Good luck to you!

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Just a quick comment for @gbear - Taking a drug holiday while on Prolia is NOT RECOMMENDED!!! Now if you mean switching over to Reclast for a year or so, then taking a holiday on Reclast, that makes sense. If you stop Prolia without follow-on treatment there is a really high risk of fracture for about 12-18 months as you lose a lot of bone density and structure.

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Michael Lavacot | @michaellavacot | Jun 24 12:46pm
In reply to @hlp123 "Yes ! You are not alone. I experienced the same pains in my joints and hands..." + (show)
Profile picture for hlp123 @hlp123

Yes ! You are not alone. I experienced the same pains in my joints and hands that you describe. The only explanation I get from my endocrinologist is that I have to "wade it out" and it will become less intense. Little comfort for those of us who are experiencing the pain.
Keep us posted on how you are feeling . Good Luck

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The good news for those taking Reclast for the first time and having issues, is that the occurrence of issues on the second and subsequent infusions drops dramatically. Here is a snapshot from Dr. John Bilezikian on the subject. One other note, you might talk to your doctor about spreading out infusions longer than once a year. New trials showing effectiveness for 5 or even 10 years depending on your goals for treatment.
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gbear | @gbear | Jun 24 2:49pm

Wow, that is interesting! I’d like to see more about the basis of this study.
I had such a strong reaction to Reclast and have been thinking I would never do it again.

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