reactive arthritis -salmonella poisioning

Posted by Gigi @kivagood101, Nov 27, 2024

F75. Previously healthy, mobile. I got salmonella poisoning at a breakfast place. Confirmed. 5 weeks later I started to hurt all over.. No history of arthritis. Confirmed as reactive arthritis-only 3 sources- HIV/AIDs, IBS, food borne illness. Mine from the latter. Confirmed by Infectious Disease Specialist. Rheumatologist prescribed Celebrex. One pill and violently ill. Now taking Advil. Not helpful. PCP has no clue what to do next and rheumatologist seems uninterested! Trying to do medical research [used to be called Reiter's]. Has anyone had it or had it treated successfully?

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I meant to add that the Methotrexate is causing serious balance problems and the Rheumatologist doesn't want me in PT.
I have a great PTbive seen for years
Balance and cognitive disfunction aren't 2 things I can live with much longer!

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@kivagood101

My Rheumatologist said absolutely no PT or exercise! I'm from Minneapolis so I've no problem go back. But how? This is my very first encounter with the medical system. Seriously. How does one actually contact the right dept and the right doc? Reactive arthritis is relatively rare, ageism is a real issue. The Methotrexate is what started the cognitive problems and the Rheumatologist said "live with it"!

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Consider getting a second opinion if it feels like your rheumatologist is not addressing your concerns. I was 35 when reactive arthritis hit me and was weak enough that I had to crawl to a chair to stand up; I started exercise after the RA went into remission, but strengthening and stretching would have helped me. Even with the fatigue, using exercise bands helps mobility. Here is a link on Mayo Clinic depts that treat RA, but perhaps others on this forum can give you info closer to your home. https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/doctors-departments/ddc-20354844

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@kayabbott

Consider getting a second opinion if it feels like your rheumatologist is not addressing your concerns. I was 35 when reactive arthritis hit me and was weak enough that I had to crawl to a chair to stand up; I started exercise after the RA went into remission, but strengthening and stretching would have helped me. Even with the fatigue, using exercise bands helps mobility. Here is a link on Mayo Clinic depts that treat RA, but perhaps others on this forum can give you info closer to your home. https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/doctors-departments/ddc-20354844

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Thank you. Im out in Seattle but mpls is home. I've no problem coming back for treatment but I am clueless how to make direct contact with a human [?] to determine if this condition is even treated. The vm system is like a round-about and any suggestions on how to get to a specific department or person would be great.

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@kayabbott

Consider getting a second opinion if it feels like your rheumatologist is not addressing your concerns. I was 35 when reactive arthritis hit me and was weak enough that I had to crawl to a chair to stand up; I started exercise after the RA went into remission, but strengthening and stretching would have helped me. Even with the fatigue, using exercise bands helps mobility. Here is a link on Mayo Clinic depts that treat RA, but perhaps others on this forum can give you info closer to your home. https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/doctors-departments/ddc-20354844

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Thank you again. I tried to complete their initial forms. The app doesn't work. Argh.

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