Reactions when you tell people you have Parkinson's Disease?

Hello @kar907 and welcome to Mayo Clinic Connect. I understand how difficult it is to face a diagnosis of PD. While you are right that there is no cure, there are many ways to manage the symptoms. Have you been prescribed medication? If so, is it helping? There are many different medications now that can be used if one medication is not dealing with your symptoms effectively.

What about physical therapy and an exercise program? There is PT specifically designed for patients with Parkinson's. If you have not yet received a referral for PT, I would suggest requesting one.

Here is an article from the Parkinson's Foundation website that discusses exercise and PD:
https://www.parkinson.org/living-with-parkinsons/treatment/exercise. Are you currently exercising on a regular basis? If not, this will help you both physically and emotionally.

I look forward to hearing from you again. Will you continue to post your concerns and questions?

@goatgirl28
Interesting and others should comment as I am quite new here. I would think that tremors would have to be major to burn calories. And if that was the case then c/l is the first and gold standard med you would get. But for you sounds like not the first med. This one really confuses me. I had a tremor in right hand that started to be noticeable and that is what brought me to the neuro (movement specialist ). As we all know each case so very different.

@kar907
I have lost a bit of weight but find I am not really interested in food. Nothing tastes good.

@kathy49 The only 'answer' I received was tremors burn more calories than I could ingest. I started on the carvi/lepo.

@gregmt
thanks for the stretching advice---I do need to do that more often. on another thread I mentioned fascia blasting for stiffness. My wife has been doing it for years and she fascia blasted my hand, shoulders and legs (different times) and it was great relief. of course, it is not permanent, and it does hurt sometimes but the relief is real for me. I bought her a motorized blaster for Christmas (had to save up for this) and that thing works very well. It also helps that my wife does the "blasting". Check it out

@goatgirl28 Well that is not a problem I have had and sounds drastic.
What was the problem and what changed to stop the weight loss?

@kar907 Yes. I went from 155# to 106# in a matter of months. Scary! All the doctors and all the tests said I was healthy. I forced myself to eat as much as often as I could to no avail. Finally found the right dr. and neuro and am now back to my preferred weight of 127#.

@kar907
I also have lost weight, maybe over 20 pounds. Most of the time eating has not been a problem but might have cut back a little. Considering my work energy has also reduced I think under "normal" times if anything my weight might have crept up some.

Has anyone experienced weight loss. I have lost about 30 lbs. I believe it could be because I have no appetite and sometimes just cannot eat and feel nauseated. My doctor wants to have my thyroid checked to make sure it's not over or under active. Anyone have similar experience?

@kar907
I too have been recently diagnosed with PD and do not/have not ever known anyone with PD. So this disease is a foreign challenge to me as well. I have found connecting with PD support groups has given me the support and a resource of information that I was searching for. It is comforting to find others who can relate and understand what we are experiencing. Share your fears and ask your questions here and you will receive support and answers in return. Stay determined and strong and you will master this disease.