Clear Cell Endometrial Carcinoma: Rare, aggressive, hard to treat

Posted by kate123 @kate123, Aug 13, 2016

Hello, I'm new to this group but would like to find others with my type of cancer to chat with.
I was duagnosed in January with clear cell carcinoma endometrium. (I had uterine cancer previously but was lost to folliw up) I had surgery in February and had everything removed including lymph nodes. I was told they caught it early but to remember it is a metastatic cancer and can return anywhere in my body with no signs or symptoms. I was also told there is no test to detect recurrence.
I'm caught between feeling relieved and grateful and terrified it will hit me again out of the blue) Is there anyone out there who can relate?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Hello- I was diagnosed with clear cell endometrical cancer stage III in June. I tried Taxol but had a terrible reaction. I decided not to do chemo against my doctor’s advice. I just finished 5 weeks of radiation and have started experiencing lower back pain which makes me very concerned since it is what I experienced before my diagnosis. Can anyone else relate? It is so hard to find information about this particular cancer online.

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@sm22

Hello- I was diagnosed with clear cell endometrical cancer stage III in June. I tried Taxol but had a terrible reaction. I decided not to do chemo against my doctor’s advice. I just finished 5 weeks of radiation and have started experiencing lower back pain which makes me very concerned since it is what I experienced before my diagnosis. Can anyone else relate? It is so hard to find information about this particular cancer online.

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@sm22, have you reported this new pain to your cancer team? When is your next appointment?

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