rapid heart rate, very sick for 6 months, any ideas?
Since March 2025 I have experienced severe left chest pain, tightness, pressure which sometimes radiates to side isolates to the left lower rib cage area. Further to this, I experience difficulty breathing, shortness or breath, tachycardia at rest, sometimes my HR goes to 160 bpm. At times, it feels as though I am having a heart attack or afib, vtach episodes, generally low blood pressure, sometimes high then drops significantly. I experience dizziness daily (not vertigo), lightheadedness, fatigue and severe weakness as well as low grade fevers and abdominal pain off and on.
I have had many ECGs, 3 echocardiograms, CT angiogram, cardiac MRI, Brain and T-spine MRI, Calcium CT score, Endopat test and several blood tests. The findings were a Patent Foramen Ovale (PFO) and a Atrial Septal Aneurysm with a significant R-L shunt as well as an incidental nutcracker syndrome finding. Blood work has been okay except a lower white blood cell count than normal.
I was previously very healthy and active. I have never experienced problems with my heart. Any suggestions on where to look?
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It must be shocking to find all this out, but also to have been driven to get all the tests when you felt so unwell. SHEEESH!
I can't offer any guidance, sorry. It's not in my experience. I have AF, but it is well controlled after two ablations. My heart and vasculature is otherwise fine.
I don't know about your history, how hard you worked your heart in past years, nor do I know your age. However, the heart does age, and with age comes several heart conditions. Often it's a bad valve, or three, or it is rogue firing cells in the various walls of the heart that can awaken and try to take over the heart's rhythm....chaotically. This is what happens with many arrhythmias, notably the fibrillating kind. I know nothing about PFO, but it seems to me that if it were present in younger years it would have affected your ability to do hard work? Maybe not. Both the AF and the PFO raise the risk of stroke, so I hope you can report that you are on apixaban, rivaroxaban, or coumadin.....?
Just my thoughts. Many years ago, I had low blood sugar and light headedness and dizzy etc. I am now 76, and have not had the problem in about 40 years. But my diet is very different than when younger. I still have some sugary foods in my diet but much less. And NEVER junk like donuts or sweets with white refined flour. I used to binge on sweets but not for many years.
I also at times have blood pressure that is too low and is always on the low side. That can bring on the dizzy spells etc. But for some time have been okay. But high stress can trigger, but no longer have the source of it.
Also the low blood pressure issue after I had covid real bad.
If you were vaxed, it could be related to that. If you are overweight, or eat too much at one time whether healthy foods or not. Abdominal pain, the result of processed foods, too much meat and cheese and not enough fiber??? Abdominal pain usually what we throw down the hatch. Too much acid or heavy foods, constipation. Afib can be caused by caffeine. I am unable to have very very little.
Hope something I have said, rings a bell.
Hi @michelled15, I’m sorry you’re going through this. Since you have a PFO with a significant R-L shunt and atrial septal aneurysm, it may help to ask your cardiologist if PFO closure could reduce your symptoms. Because of the rapid heart rate, BP changes, and dizziness, it may also be worth discussing dysautonomia/POTS testing.
Many patients benefit from seeing a structural heart or autonomic specialist for a second opinion. Wishing you relief and answers soon.
My diet is quite bland, I don’t eat very much. Lots of smoothies, cereal, soups and sandwiches. Yes, I’ve been vaccinated for COVID and the flu. Currently I am slightly underweight and have also been very fit previously. I also never drink caffeine or eat a lot of highly processed foods. Generally I take aspirin and sometimes propranolol to lower my HR.
Thank you. I’ve been trying to see a specialist to no avail.
Did they say any of this was related to the PFO and ASA since those were the only abnormalities found, or completely unrelated?
Nothing other than it is possible but that generally those conditions are not associated with chest pain.
what types of cereals? what kind of breads?? What is in the sandwiches?? Veggies?