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Anyone have Radiation-Induced Brachial Plexus Neuropathy?
Hello All, I am looking for people has more experience on late developed RIBN. 3 years after my bilateral Radiotherapy on my neck; I started to feel tingling on the upper left arm (deltoid) , then it spread to my bicep and tricep and it got weaker within 6-8 months and within a year I completely lost the function of left arm but my hand works, I have numbness on first 3 finger, I got very evident atrophy on my left arm muscles; after some time it also stared spreading to my right arm in the exact sequence; I am on the 7th month. but since right is my dominant arm I think it will take longer then 8-9 months it is now functioning 20%, my hand is working as the left one. in this 18 moths, I have tried Japanese medication called Radicut -(Ederavon), Cortisone steroids, hydrotherapy, physiotherapy, acupuncture, various medications (neurotin ecc), vitamins but nothing has help… I am desperate for a help… did anyone recovered from this and how?
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I feel your frustration and concern. I got my first symptoms after 5 years of completion of my radiation treatments. It was in my dominant right arm and now it’s useless, i’ve tried physical therapy, red light therapy, acupuncture, messages, icryo therapy, dry needling and nothing has worked. I have been reading about hyperbaric oxygen therapy while there is no good study it works on our condition I’m sure your like me I’m willing to try anything if there a sliver of a chance it will improve quality of life. I also learned about nerve transfer, tendon surgery but nobody really tells you about that unless you bring it up and then they tell you because all your nerves are affected it won’t work. I’m sorry you are going through this it sucks!