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Anyone had success with HBOT therapy for radiation cystitis?

Posted by 403211th @403211th, Dec 3, 2024

Has anyone done hyperbaric oxygen therapy for radiation burn in the bladder? My doctor says it is the best option for me, But I am claustrophobic. To lay in an eclosed tube for an hour a day or twice a day is blowing my mind. I would try this in a heartbeat if it was not for that. Has anyone had this and how was it?

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jrs619 | @jrs619 | Jun 21 7:49pm
In reply to @403211th "Yes I have done the HBOT chamber. I had the same problem with bleeding. I could..." + (show)
Profile picture for 403211th @403211th

Yes I have done the HBOT chamber. I had the same problem with bleeding. I could not lift anything over 15lbs. and I would bleed. Or have a hard stool movement I would bleed. It has cured me. I did the mild chamber which I purchased. I would of had to travel 200 miles to get the hard chamber treatment which would of consisted of 40 to 60- 1hour treatments. I had done a lot of research about the chambers. I had to do 80 hours of treatments because it was the mild chamber. I am also very claustrophobic. I got a prescription for lorazepam from my Doc. I only had to take 1 for the first 4 times I was in it. After that it did not bother me anymore. The nice thing was the one I purchased I could sit in it in a chair and use my I-Pad to keep me occupied. You only have to breath oxygen thru a mask which I also purchased with the chamber, which produced 90-95% pure oxygen. I must say I was very skeptical about it working. I have to say it really worked for me. The really nice thing about it was I could sit at home and do the treatments which I did 1 hour a day 5 days a week. I can truthfully say it done the job for me!

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@403211th
Happy to hear your success story. How much is s the cost for something like that and what companies did you deal with.
Thanks

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jrs619 | @jrs619 | Jun 21 8:02pm
In reply to @cochuir "I have completed 40 sessions of HBOT for radiation cystitis. I am reserving judgement at present,..." + (show)
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I have completed 40 sessions of HBOT for radiation cystitis. I am reserving judgement at present, they said it can take 2 months after the final session to work properly, hopefully it will. It was medically supervised with a Doctor and nurses. I was covered with my medical care in Ireland. Hopefully it has helped in other areas, best of luck.

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@cochuir
Hopefully it will solve your medical issue. One thing for sure you have a lot of people. With same or similar issues pulling for you. Let us know how it went. Thanks

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jrs619 | @jrs619 | Jun 21 8:08pm
In reply to @jime51 "I'm starting HBOT next week for radiation proctitis. The chamber I'll be in is mostly clear,..." + (show)
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I'm starting HBOT next week for radiation proctitis. The chamber I'll be in is mostly clear, and I have the choice to take a book or watch TV or movies for the two hours. I have to schedule carefully because I spend a lot of morning time in the bathroom. I'm planning and praying to avoid incontinence during those two hours.

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@jime51
Hope your treatments go without a hitch. I can feel your anxiety, prayer always helps.
Take care let us know how you made out.

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403211th | @403211th | Jun 27 6:14pm
In reply to @jrs619 "@403211th Happy to hear your success story. How much is s the cost for something like..." + (show)
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@403211th
Happy to hear your success story. How much is s the cost for something like that and what companies did you deal with.
Thanks

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@jrs619 I purchased a chamber from Newtowne Hyperbarics. Pocomoke MD. The cost of the chamber and everything that you need for the treatments, cost me just over $ 7600. I was able to purchased one that was used 1 time and had some blemishes. They gave me a full warranty just like a new one. I never had any problems with it. The oxygen machine you have to purchase new and that has a 10,000 hour warranty. My chamber was a sit in, I was able to put a comfortable chair in it. The chambers that you lay in are quite a bit less money. But with claustrophobia I did not think I could handle that.

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cochuir | @cochuir | Oct 15 5:57am

70 year old Gleason 7 (4+3), ADT, Brachytherapy, RT. Radiation cystitis for 2 years, medications no improvement. Had 40 sessions of HBOT, all cured 3 weeks after completion - would recommend it.

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lsk1000 | @lsk1000 | Oct 16 7:56am
In reply to @cochuir "70 year old Gleason 7 (4+3), ADT, Brachytherapy, RT. Radiation cystitis for 2 years, medications no..." + (show)
Profile picture for cochuir @cochuir

70 year old Gleason 7 (4+3), ADT, Brachytherapy, RT. Radiation cystitis for 2 years, medications no improvement. Had 40 sessions of HBOT, all cured 3 weeks after completion - would recommend it.

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Happy for you! 74 HBOT sessions had no effect for me, but I would recommend it as a first step for anyone experiencing cystitis. Supposedly there’s a 90% cure rate.

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29modela | @29modela | Oct 16 8:04am
In reply to @cochuir "70 year old Gleason 7 (4+3), ADT, Brachytherapy, RT. Radiation cystitis for 2 years, medications no..." + (show)
Profile picture for cochuir @cochuir

70 year old Gleason 7 (4+3), ADT, Brachytherapy, RT. Radiation cystitis for 2 years, medications no improvement. Had 40 sessions of HBOT, all cured 3 weeks after completion - would recommend it.

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Wonderful for you!!
I had a similar experience. Cancer at age 70 in 2016, stage 4. Prostectomy. Proton radiation in April 2017. Suffered with messed up bowels and incontinence until April of this year. Then all hell broke lose. Digestive system went totally haywire, lost 25 lbs in one month and not able to eat much. Urinary system also went crazy. Massive bleeding and clot blockages. Had 30 HBOT sessions in June and July. As of today, intestinal issues cleared up. Gained 7 pounds back and can eat normally. They had to cauterize the inside of the bladder. Urine flows like a river but no valve to stop it. Waiting to get evaluated for an artificial valve. Good luck to you. HBOT saved me. John

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