1. < Gynecologic Cancers
Profile picture for tammielynn

Radiation and chemo for vulvar cancer

Posted by tammielynn @tammielynn, Feb 1 2:43am

I had a left hemi vulvectomy in 2020 and another in October of 2025. I am still not 100% healed from that. 50-60% chance I will require radiation and chemo in my near future. I’m just wondering what I should expect from that sort of treatment. I’m scared yes, but I’d feel better knowing what to expect. Anything will help me right now. I feel like I’m on a life raft with no way to tell which way the wind is blowing.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for andwho
andwho | @andwho | Mar 20 9:07am
In reply to @bobette1 "I had vulvar cancer in 2022-2023. I had a radical vulvectomy left side. After surgery it..." + (show)
Profile picture for bobette1 @bobette1

I had vulvar cancer in 2022-2023. I had a radical vulvectomy left side. After surgery it was decided I needed radiation and chemo for 6 weeks. The radiation was daily for 6 weeks and the chemo was once a week for the 6 weeks. I felt like I was on fire from the inside out for parts of it. I remember it being uncomfortable to sit I know I used a donut pillow. They gave me some cream that made things better. I have been cancer free for 2 years. This is an aggressive cancer as I am sure you know so I welcomed the treatment. Best of luck to you! Let me know if you have more questions.
Bobbi

Jump to this post

@bobette1
I was diagnosed in may 2023 with vulvar cancer stage 1b. I went thru radiation & chemo because I was not a candidate for surgery since I am very small & thin where the sun does not shine. There would not be enough skin for skin grafts. I am currently waiting on a biopsy report but believe the cancer has returned. My oncologist said because of previous radiation down there I most likely will not be able to have radiation again. Does anyone know what alternatives I have? Has anyone had this experience?
I am waiting to speak to doctor.

REPLY
1 reply
Profile picture for bobette1
bobette1 | @bobette1 | Mar 24 7:54pm
In reply to @andwho "@bobette1 I was diagnosed in may 2023 with vulvar cancer stage 1b. I went thru radiation..." + (show)
Profile picture for andwho @andwho

@bobette1
I was diagnosed in may 2023 with vulvar cancer stage 1b. I went thru radiation & chemo because I was not a candidate for surgery since I am very small & thin where the sun does not shine. There would not be enough skin for skin grafts. I am currently waiting on a biopsy report but believe the cancer has returned. My oncologist said because of previous radiation down there I most likely will not be able to have radiation again. Does anyone know what alternatives I have? Has anyone had this experience?
I am waiting to speak to doctor.

Jump to this post

@andwho I had vulvar cancer in 2023 and had surgery/chemo/radiation. I have not had a reoccurrence. I have not heard that you can't have radiation again down there. Please keep me posted on what you hear from your Dr. I will be praying for you.
Bobette

REPLY
1 reply
Profile picture for andwho
andwho | @andwho | Mar 25 2:18pm
In reply to @bobette1 "@andwho I had vulvar cancer in 2023 and had surgery/chemo/radiation. I have not had a reoccurrence...." + (show)
Profile picture for bobette1 @bobette1

@andwho I had vulvar cancer in 2023 and had surgery/chemo/radiation. I have not had a reoccurrence. I have not heard that you can't have radiation again down there. Please keep me posted on what you hear from your Dr. I will be praying for you.
Bobette

Jump to this post

@bobette1
The biopsy came back vulvar cancer again 😬
Going for a pet mri for further evaluation. Will need surgery. Had radiation& chemo with the first battle, don’t know what to expect. Any advise from anyone with recurrent vulvar cancer that needs surgery? Please help!

REPLY
View MoreView Less
Please sign in or register to post a reply.