RA, lupus & chronic sinusitis

Posted by brcc @brcc, Mar 17 6:03pm

I have RA & lupus and have been dealing with a constant sinus infection and significant sinus crusting for the last 10 yrs. I’ve had 3 sinus surgeries and intensive antibiotic therapies with no success. I see an ENT 2x a month for debreadments. I lost all sense of smell around 5 years ago and have lost all sense of taste 6 months ago. I’m currently taking rinvoq, hizentra & recently started dupixent as well. I’ve seen no improvement. Is there anyone else out there that has a similiar experience?

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brcc | @brcc | Mar 20 11:59am

In reply to @artemis1886 "@brcc How long have you been on IVIG? It took about six months for mine to..." + (show)

@artemis1886 I started taking it about mid November so I’ve been on it about 4 months. I have to say this is the first winter I haven’t been sick .

cmspringer | @cmspringer | Mar 20 2:40pm

In reply to @brcc "@cmspringer I’ve had RA for almost 30 yrs but didn’t start having issues with my sinuses..." + (show)

@brcc
Thanks. I’ll check it out.

artemis1886 | @artemis1886 | Mar 20 2:57pm

In reply to @brcc "@artemis1886 I started taking it about mid November so I’ve been on it about 4 months...." + (show)

@brcc I took it from age 10-18 and back on it again. I kept getting pneumonia and ending up in the hospital. I have asthma and autoimmune problems. I get sick really easily. Now not so easy.

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