Anyone had long term remission R-CHOP chemo for Large B-Cell Lymphoma?

Hi Suppiskey2surv,

I had RCHOP and RDHAP about 10 years ago for Mantle Cell Lymphoma. Have been in remission ever since. I'm pretty sure the medical community will never say you are cured after having Lymphoma. My Oncologist says the chances of it coming back for me are about 1%.

Randy

@randman

Thanks! Yeah . . . I've read that saying things are "cured" is never going to be a thing. It would just be nice if they could say that, though. Did you have a tumor anywhere? My husband had a baseball-sized tumor in his small intestine they said was "aggressive" but because he was strung along for a whole year with symptoms, dismissed by a dermatologist (of all specialties) telling him he had a "heat rash", while he had so many other things going on at the same time . . . I couldn't believe it! "Aggressive?" Well, duh . . . . of course it was "aggressive". It was cancer for pity's sake. I think he had that thing growing the whole time they prescribed him some "special" soap. Haaaaa. What a pathetic, misdiagnosed excuse when he ended up with his Stage 4, Non-Hodgkins Large B-Cell Lymphoma (NHLBCL) . . . I have an acronym for what we were told but because I don't think it would be allowed on this forum, I shall refrain from sharing it here. Just one of many, many goofy things we were told here at the local level. His oncologist missed a PE for heaven's sake (3rd one, mind you). He had had two others in the past . . . yet she was perfectly willing to deny us a follow-up scan only 2 1/2 years after his R-CHOP treatments . . . . I had to walk out of the exam room that day after she told me that she would never make a mistake because she had been to med-school. I just told her, before I walked out, that I didn't care how much education she had had. I could tell there was something really wrong and demanded the scan. She later agreed after I walked out . . . and it took 9 hours for them to call us about the results and said we should head right to the ER because they had noticed that PE on the imaging results . . . . EXCUSE ME! It took NINE hours to determine that???? That's one reason we fired the docs we were seeing and sought help from MAYO for the kidney disease he has . . . long story there too . . . but, needless to say, we just had HAD it here and travel to MAYO now when we need to.

Anyhow . . . thanks for sharing your story. It was really helpful.

Best wishes,
Dawn