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Questions to Ask and Treatment Options
I recently moved this past summer and have my first appointment with my new Neurologist at Duke in January. Diagnosed 3 years ago with (CIAP) Chronic Idiopathic Axonal Polyneuropathy. My pain levels have gotten pretty consistent over the past 4-5 months.
Over the past 3 years I have tried the following with no luck:
Gabapentin
Duloxetine
Alpha Lipoic Acid-R
Lidocaine Cream
Pregabalin (still taking)
Acetyl L-Carnitine (still taking)
I did have success with the Pregabalin for about 4 months, but then it stop working.
Anyone have any suggestions on what I should ask when I go to my appointment as far as treatment? They my run the labs again and do another EMG-NCS, but I doubt they will find anything new.
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Neurologist would be the one to see. My dumbness was on and off, at the same time had a spot, if touched, had shooting pain. Foot felt like it was in wet sand sometimes. Strange sensations I’ve just gotten used to. Noticed eating sugary things, especially at night, makes it worse.
What are you doing for the numbness? I’m off balance with it
I’m off balance as well…finding walking behind a shopping cart to be at my best. The root of my issues had come from toxic levels of B6. When I recently felt less balanced, I had bloodwork done. Sure enough, B 6 had risen. So I made changes: new multi without it, trying for more exercise ( even going up and down grocery aisles, ) and drinking more water. Aside from that I sometimes put a heating pad on my feet, but must be careful with temp. I use Nervive every night. There doesn’t unfortunately seem to be a magic wand.
Thank u for that. Just had my blood levels checked and I was ok with the B. Going to try the Nervive!
There is an app called Nymbl which is very helpful in helping with balance. You use your cell phone and you do appropriate exercises, physical and mental (both at the same time) which I feel sure you will manage.
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1 ReactionThanks! I will definitely check out that app. I do go to PT once a week and she has me to balance related exercises. I just have to be disciplined, motivated, consistent to spend time at home doing some. It sounds like that app would help. Appreciate the advice! ( a valuable gift for the holidays )
glennar075 You don't happen to sleep with your hand under your head do you. I only ask as I can't seem not to and my other hand crunched up to my chest. And wake sometimes with numbness an pain from that. U could also potentially have developed a little stenosis or something in your cervical spine causing it. As I have that going on as well, A CT scan could possibly assist in identifying that...