Question for those doing the Flamingo trial
How long are you in the trial?
Is the medicine accessed thru your port?
Side effects?
Any other info?
Questions to ask my oncologist?
I hope to be starting this thru Siteman in St Louis later this fall after I finish Kadcyla.
Thanks!!!
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What is the Flamingo trial?
Hello: I am recently enrolled in the Flamingo trial and will be starting the shots next week. The shots are administered on the thigh (so not on the port) with two needles that form a small 'bleb' under the skin, with the vaccine then 'mixed' under the skin. I have heard that reported side effects are possible mild fatigue and headache and some redness at the side. Shots are once a month for six months, and then more intermittently over three years.
I had two lengthy consulting visits with my oncologist and the PA at my clinic who is coordinating patients in the study, who both provided thorough information about qualifications, what the shots entail, length of time in the trial, how costs are paid for blood work and other tests, tests required before you begin, etc. The consent form also includes a lot of information.
This link has good information:
https://greenwichlifesciences.com/clinical-trials/flamingo-01-phase-iii-clinical-trial/
All best wishes to you! Patty
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4 Reactions@pattynau hola! Te escribo desde España. Me gustaría saber cómo te fue en el ensayo.
Estoy terminando herceptin y mi oncólogo me ha ofrecido participar en el ensayo. Por un lado, me gustaría contribuir a la ciencia pero tengo miedo de los efectos secundarios.
Me ayudaría conocer tu experiencia. Gracias!
*English translation*
Hi! I'm writing from Spain. I'd like to know how your trial went. I'm finishing Herceptin and my oncologist has offered me the chance to participate. On the one hand, I'd like to contribute to science, but I'm afraid of the side effects. I'd really appreciate hearing about your experience. Thanks!
I'm tagging @pattynau to make sure she sees your question.
@shirope, did you decide to enrol in the study? How are you doing?
@shirope Hello -- I am doing fine in the Flamingo trial -- I started the trial in March 2025, with shots once per month for six months, and now the shots are administered once every six months for three years. I have had very minimal side effects -- typically a slight headache and slight fatigue the day of the shots, and some redness near the site(s) on my thighs. I hope this helps. For me, I jumped at the chance to be part of this clinical trial. Let me know if you have any more questions.
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