PV positive & Jak2 neg - good thing??

Hi Chella,

Yes, I have serious fatigue issues. I often need a nap in the afternoon. I seem to need a lot of sleep in general.

I must also pace myself. In fact, my law school accommodates me by splitting each of my exams into two pieces so that I only take one half exam per day during midterms and finals. I wonder how I will manage the bar exam!

Hi back buckaroobanzai, I truly get the pacing one's self. Law school awesome learning category. I hope they also allow you to pace on the exam.
My mother could not teach me needlepoint or crochet because I couldn't sit still, as a kid and most of my life ...now? wow, sometimes I forget how long I've been sitting. I have been devoted to wearing a tracker and I make myself get up and move every hour even if it's just a couple of minutes. Im doing research on eating for and managing PV and getting myself stronger to either beat it up and let it know who's boss. LOL.... I usually dont rest well but fill my night with naps. There is an occasional night I will have normal sleep.

My doctor who I had for several years retired so then I found an excellent DO however she stopped taking PCP work after the first year which was last year so then I found another for PCP items, well it was that PCP new to me who suspected the PV after lab work and questions and sent me to her group hematologist however when I called to that office the clerk was rude to me so I struck out on my own and found one closer to me. Then I sent the PCP her name and asked to change her referral. If they are rude at the start it's not a good sign. This hematologist/oncologist is connected to the cancer center in Houston so like I told her, if it's serious or not having both hematologist and oncologist in one I have covered both. I like her too so far.
Has anyone have trouble with dropping energy, like just bam! in the day like wow just a big drop where you feel like you should lay down and take a nap feeling.?

Dr. Mary K. Crow MD with Millennium Physicians Medical Oncology & Hematology. They have multiple offices, Houston, Kingwood and The Woodlands but several others too. Im going to the Kingwood office. I didn't have to wait long for an appt where the other place they were booked way out. Hope this helps you but if she isnt a good fit dont stop looking.

Hi back buckaroobanzai, I truly get the pacing one's self. Law school awesome learning category. I hope they also allow you to pace on the exam.
My mother could not teach me needlepoint or crochet because I couldn't sit still, as a kid and most of my life ...now? wow, sometimes I forget how long I've been sitting. I have been devoted to wearing a tracker and I make myself get up and move every hour even if it's just a couple of minutes. Im doing research on eating for and managing PV and getting myself stronger to either beat it up and let it know who's boss. LOL.... I usually dont rest well but fill my night with naps. There is an occasional night I will have normal sleep.

Would love to know what you have found out about foods & PV. I’m sure proper eating helps a lot with fatigue also.

So far, I may have been eating too much of good things. I mainly eat big plate of a mixed salad with a protein. Very little to no sugar and starch most days. However I seeing very little recommendation on nutrition specifically and what little I've found says not to eat alot of green leafy veges and beans and even mentions cold water fish. It's a little confusing because this is normally considered a healthy diet. I think my insurance will pay for a meeting with a dietician so I may go that route. I do eat alot of salads and seafood proteins. So for now I'm alittle confused, I've changed about half the leaf salad out with Cucumber and talapia is a warm water fish.

So far, I may have been eating too much of good things. I mainly eat big plate of a mixed salad with a protein. Very little to no sugar and starch most days. However I seeing very little recommendation on nutrition specifically and what little I've found says not to eat alot of green leafy veges and beans and even mentions cold water fish. It's a little confusing because this is normally considered a healthy diet. I think my insurance will pay for a meeting with a dietician so I may go that route. I do eat alot of salads and seafood proteins. So for now I'm alittle confused, I've changed about half the leaf salad out with Cucumber and talapia is a warm water fish.

So far, I may have been eating too much of good things. I mainly eat big plate of a mixed salad with a protein. Very little to no sugar and starch most days. However I seeing very little recommendation on nutrition specifically and what little I've found says not to eat alot of green leafy veges and beans and even mentions cold water fish. It's a little confusing because this is normally considered a healthy diet. I think my insurance will pay for a meeting with a dietician so I may go that route. I do eat alot of salads and seafood proteins. So for now I'm alittle confused, I've changed about half the leaf salad out with Cucumber and talapia is a warm water fish.