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Pituitary adenoma rediagnosed: They're not sure now
I have been having horrible breast pain and cysts for about 3 years. Dr's did a total hysterectomy, said that would stop my pain. It worked for about 6 months. The pain is back and I still have breast discharge. My headaches are horrible. After getting an MRI, I was dx with a putiary tumor. Then I had a 6 months follow up mri. Now they say they have no idea what it is. Then I started getting terrible joint pain in my hands. Now it's also in my feet and both knees. My prolactin levels were high, but have been up and down. Seeing a group of Mayo Dr's next month. I'm hoping to get some answers. Has anyone else had any of these problems? I'm desperate. I hurt everyday. I will add I am a 44 year old female with 2 children. Thank you in advance.
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I’m so sorry you experienced that. That is exactly how I feel now.
I go back in 2 weeks to have an mri to check and see if the pituitary adenoma is gone.. I’m assuming not, because I am still lactating. What is the surgery like, if I may ask? Did yours respond to Cabergoline at all? Did you have migraines also or worse ones? did you have any psychological symptoms, mood changes etc? I do not think mine is responding to the Cabergoline and I have a host of symptoms. I can’t even perform my job in customer service anymore.
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1 ReactionHi @fierybeacon, I'm tagging @barbiejk to make sure she sees your questions to her.
I hope the MRI gives you answers about the pituitary adenoma and you can get effective treatment.
@reilly3
Were there any side effects from the medication ?
@gatorz please would you let me know name of the medicine. My son has been diagnosed with it and doctors in Calgary doing wait and watch approach. It had bled in brain once. Please let me know the name of the med. Hoping your daughter feel better soon