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Pulmonary Fibrosis*

Posted by tetreaulta5 @tetreaulta5, Feb 25, 2012

Is there any one out there that has PF?

Interested in more discussions like this? Go to the Lung Health Support Group.

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oliver22 | @oliver22 | Nov 16, 2016
In reply to @inspiration "I was diagnosed with IPF 16 years ago. Since then I have only been taking acid..." + (show)
Profile picture for Joan Thorkelson @inspiration

I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013

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hi, i have been on Esbriet 18 months. very pleased with results i also use O2 24-7 some side effects but do-able,recently reduced to 6 caps aday 270mg.breathing test have improved! go for it

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oliver22 | @oliver22 | Jan 13, 2017
In reply to @loisblo "I have IPF." + (show)
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I have IPF.

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how long since your diagnosis? i have going on five yrs. i posted nov. 2016 some detail

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loisblo | @loisblo | Jan 13, 2017

I first was diagnosed with pulmonary hypertension and in trying to find out what was causing that, they found it was IPF, So about 4 years since the beginning. Are you on oxygen yet?

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1 reply
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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 13, 2017

Hi @oliver22, thanks for welcoming new member @loisblo.
Let me introduce you to a few other Connect member who have been talking about pulmonary fibrosis @nancyligon @pd02 @powderpuf @inspiration @muskiemama @chicoco @jvivian @mairi.

Are you on oxygen?

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1 reply
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hishamhussain | @hishamhussain | Jan 14, 2017

What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung

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3 replies
Profile picture for hishamhussain
hishamhussain | @hishamhussain | Jan 14, 2017
In reply to @inspiration "I was diagnosed with IPF 16 years ago. Since then I have only been taking acid..." + (show)
Profile picture for Joan Thorkelson @inspiration

I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013

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dear @inspiration
what is the relation between acid reflux pills which you used and IPF?
do you have gatsrIicproblems causing IPF?

REPLY
Profile picture for Justin McClanahan, Moderator
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 14, 2017
In reply to @hishamhussain "What are the types of examination can give ACCURATELY diagnosing of PF? @spicegirl, @colleenyoung" + (show)
Profile picture for hishamhussain @hishamhussain

What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung

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Hello @hishamhussain. While I see that you tagged spicegirl and Colleen Young, here are the techniques used by Mayo Clinic to diagnose Pulmonary Fibrosis, http://mayocl.in/2jiwXcU.

Have you had issues with an inaccurate diagnosis regarding PF in the past?

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oliver22 | @oliver22 | Jan 14, 2017
In reply to @colleenyoung "Hi @oliver22, thanks for welcoming new member @loisblo. Let me introduce you to a few other..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @oliver22, thanks for welcoming new member @loisblo.
Let me introduce you to a few other Connect member who have been talking about pulmonary fibrosis @nancyligon @pd02 @powderpuf @inspiration @muskiemama @chicoco @jvivian @mairi.

Are you on oxygen?

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yes 24-7 5 ltrs pulse setting for 3 yrs

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Profile picture for hishamhussain
hishamhussain | @hishamhussain | Jan 17, 2017
In reply to @inspiration "I was diagnosed with IPF 16 years ago. Since then I have only been taking acid..." + (show)
Profile picture for Joan Thorkelson @inspiration

I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don't seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013

Jump to this post

@inpiration
Could you please tel me why you use acid reflex pills?
do you have GERD or Digestive problems?
and what the relation between PF and acid reflex pills?

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