Pulmonary Fibrosis*

Posted by tetreaulta5 @tetreaulta5, Feb 25, 2012

Is there any one out there that has PF?

Interested in more discussions like this? Go to the Lung Health Support Group.

@robtlhughes

I have IPF. LabCorp cultured my sputem and yesterday evening reported I had a colony or pseudomonas aeruginosa in my lungs. What does this mean? What should I do for myself while waiting for the pulmonologist to weigh in? To protect others? And, in a related question, why do you always learn these things on Saturday night?

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Rob, don't you hate learning these reports on the weekend?! As with any infection, it is good to wash hands well and for the people around to also practice good hand hygiene.

You might be interested in joining this related discussion:
- Diagnosed with pseudomonas aeruginosa infection in my lungs
https://connect.mayoclinic.org/discussion/diagnosed-with-pseudomonas-aeruginosa-infection-in-my-lungs/

Have you met with your pulmonologist in the meantime? What treatment is suggested?

REPLY

My husband who is 74 yrs old has been diagnosed with pulmonary fibrosis.
He was a welder for forty years.
His doctor put him on prednisone for a month, his cough went away, but he could not tolerate the medicine.
He just started another drug, Cellcept.
We are hoping this is a good fit for him.

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@pinetreestate

My husband who is 74 yrs old has been diagnosed with pulmonary fibrosis.
He was a welder for forty years.
His doctor put him on prednisone for a month, his cough went away, but he could not tolerate the medicine.
He just started another drug, Cellcept.
We are hoping this is a good fit for him.

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@pinetreestate, how is he doing on Cellcept? How are YOU doing?

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@colleenyoung

@pinetreestate, how is he doing on Cellcept? How are YOU doing?

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How kind of you to ask, we are doing well.
He is finishing his first week on Cellcept, 1000 mg a day, no side effects.
After the second week he will go to 2000 a day.
We pray there will not be any side effects.

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