Pudendal Nerve Entrapment/Neuropathy/Damage
Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I’m very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want – for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
which seizure medication? I'm glad it worked for you.
For pudendal Pain I use amitriptyline with pregabalin (max allowable dose) and when needed clobetasol ointment (sparingly). Finally found relief with this combination of medication after suffering from pudendal pain for many years as a result of severe burn and destruction of tissue from a prescribed medical misdiagnosis and a genetic skin disease called lichen sclerosis. Good luck. Hope this helps.
Sorry I don't remember. It was so many years ago. I didn't take it long 'cause it made me sick.
Hello @sheilab1 and welcome to Mayo Clinic Connect. Do you also suffer from pudendal nerve entrapment neuropathy?
I’ve been told i have polyneuropathy in my legs due to a build up of arthritis and bulgin disks in my sacral and lumbar region. I did the normal protocol with my psiatrist,including physical therapy,anti inflammatories,epidural and an EMG test which pinpointed my polyneuropathy(multiple nerves). The Dr says there is no surgery to correct this but i am consulting a neurosurgeon and a neurologist because i believe the more specialists you see the better off you are because medicine is s compartmentalized. In the meanwhile,although its not currently indicated for lower back pain i find Voltarin is extrememly helpful in managing the pain along with Advil and certain stretches i do. Hope this helps,Lou
I'm dealing with nerve damage from the waist down. I am a very open person even with the embarrassing stuff. I hate it though of course. Oh I'm new to this whole group.
I had this condition for 14-1/2 years after a botched rectal surgery. I sat on a donut all that time. The only thing that finally worked was a short round of anti-seizure medicine. Ask your doctor. Good luck!
Hello @jackie1222, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It's OK to hate it…not sure any of us are particularly fond of neuropathy or nerve damage 🙂
Are you able to share a little more about your diagnosis or if the nerve damage was from an injury?
Hello. Which Doctor did you use?
Hi Jackie! I suffered this monster for years. Sat on a donut for 14-1/2 hours. Until……I started on anti-seizure medicine for an unrelated matter and I got relief immediately. I didn't take the medicine for long. You must tell your doctor.