PTSD

Posted by cheryl46 @cheryl46, Dec 29, 2024

Has anyone else felt that they have PTSD from doctors not either listening or not talking to other specialists to find a diagnosis?
Long COVID patient and it seems my life is consistently going to appointments and running the same tests.

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

Try doing your own research. Look up your symptoms and see what is suggested as treatment for them. The Mayo Clinic is a good website to do this on. You know your body better than anyone. So you can tell what works and what doesn't. If it is suggested that a different medication is suggested or stopping one, then bring that up to your doctors. They need to be the one to make that decision.

I did this with my husband who recently died of lung cancer. When he got hoarse I was the one who researched his medications and discovered which ones were causing it. The doctors agreed with me. He stopped the medications and the hoarseness went away. There were several issues like this where I did the research and the doctors agreed with me. At one point I asked my husband, "Why are we paying the doctors?" Of course, you do need their expertise when it comes to stopping or starting medications.
I wish you the best.
PML

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PTSD is overstating it in my case, but I am very frustrated with the lack of concern/empathy I have received from some doctors.

To them, I feel like an impersonal set of numbers, not a human being. My dogs have received far better treatment than I have. Maybe I should go to a vet.

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@chery146
Not sure I got your I.D. right.
PTSD can be overwhelming and drastically affect your life.

Most think it is from military but PTSD stands for Post Tramatic Stress Disorder. I was diagnosed in 2016 after being shocked 5 times in 24 hour period by my ICD/Pacemaker. I did serve in Vietnam and I was a police officer with a tragic incident and they seem to come all together. I then developed anxieity/panis disorder and did not want to leave house and was in fear all the time.

It is very serious and needs both mental and physical treatments. I was at Mayo and got consultations and medications that were extremely helpful to me. And I was able to do most life activities again.

I did not have the experience you had. My Mayo doctors and specialists were extremely sympathetic and worked as a team to treat my PTSD Anxiety/Panis disorder. Do you leaven close enough to at major medical facility like Mayo, Cleveland Clinic, John Hopkins, etc.? If you doctors are not addressing what you feel is important to you firs talk to them and if not satisfied and if possible explore changing doctors.

Just know there are very good treatments out there for PTSD along with medications. One other thing that worked for me. Is doing a exercise, class, hobby that brings you joy. That helps you mentally as well as physically. I know when I exercise and do water aerobics I am focussed on the class and not my mind whirling around. I then comeo out of class tired and ready to relax.
Good luck!

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@scottrl

PTSD is overstating it in my case, but I am very frustrated with the lack of concern/empathy I have received from some doctors.

To them, I feel like an impersonal set of numbers, not a human being. My dogs have received far better treatment than I have. Maybe I should go to a vet.

Jump to this post

Omg Scott, I am still laughing about your going to a Vet for treatment. But, I agree with you.....animals get better care and sympathy. No $35 co-pays and very expensive though. Ha!

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Medical ptsd is a very real thing! Many of us with chronic medical issues-in and out of hospitals-Dr offices -where we are often dismissed. My neurologist looked at me last time he saw him -said he had a specialist he wanted me to see. -I thought oh boy another one. Then he explained-I have medical ptsd. And ptsd needs to be addressed and treated

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