1. < MAC & Bronchiectasis

Pseudomonas treatment ?

Posted by reneemc @reneemc, 6 days ago

Received respiratory culture result today. In addition to the MAC I now have Pseudomonas. What is the treatment for this? How long and is it effective?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

fdixon63 | @fdixon63 | 1 day ago
In reply to @irene5 "Levoquin is the treatment I have been on for pseudomonas. I am being kept on it..." + (show)
@irene5

Levoquin is the treatment I have been on for pseudomonas. I am being kept on it now two times weekly as a prophylactic. Good luck. Irene5

Jump to this post

Hi Irene. Does this constant use of Levoquin reduce it efficacy? That's what we're told over and over--overuse of antibiotics.

REPLY
1 reply
blm1007blm1007 | @blm1007blm1007 | 1 day ago
In reply to @beejenigma "I am immediately hospitalized with an infection and put on IV antibiotics. They use something that..." + (show)
@beejenigma

I am immediately hospitalized with an infection and put on IV antibiotics. They use something that was effective for the last infection until the sputum culture results come back. Use any and all inhalation drugs you can. They all help. I have heard that pulmozyme is not useful with NCFBE but my doctor who takes care of me when I am hospitalized suggested I use it. I get it paid for by the company who markets it. Anyone can apply. I pay nothing. Cayston is now covered for NCFBE! I was approved right away! I am on Medicare/Medicaid. I do NOT have CF. Yes, I will be inhaling tobi one month and cayston the alternating month for the rest of my life. Use any and all meds you can. I walk 5000 steps a day. lift light weights, do yoga and kung fu. It is important for us to be in top shape. Helps you breathe, helps you fight against infections. I have pseudomonas which is not curable so I also do not drink water from faucets. I use a .2 micron filtration Lifestraw pitcher. I do not take a shower. It's dangerous due to aerosolizing pseudomonas. My faucets have the aerosolizers taken off. I bathe standing at the kitchen sink with a wash cloth. I wash my hair in the kitchen sink. I boil my neb cups after each use for 12 minutes every. time. I. use. them. which is 3 times a day. This is my life now.

Jump to this post

Hello Beejenigma
Yes, "It is important for us to be in top shape."
My belief, for myself, is that originally and before symptoms of my illness began, my immune system was depressed ( I was under extreme unrelenting stress, not sleeping well and was eating too many unhealthy items) and allowed me to be more vulnerable and susceptible to contracting MAI. Don't know for sure.
Yes, "It is important for us to be in top shape."
With finally learning that I have BE/MAI and a Hiatal Hernia I am doing much to try and keep the immune system in better shape/good shape...as I imagine, we all are doing as best we can considering every persons big life picture.
I have also done some of the things you have mentioned once I learned and was able to educate myself on, what to do, after finding this site.
Wishing you the best of care and strength to do all you know you must do for yourself.
Barbara

REPLY
irene5 Irene Estes | @irene5 | 1 day ago
In reply to @fdixon63 "Hi Irene. Does this constant use of Levoquin reduce it efficacy? That's what we're told over..." + (show)
@fdixon63

Hi Irene. Does this constant use of Levoquin reduce it efficacy? That's what we're told over and over--overuse of antibiotics.

Jump to this post

You are correct about efficacy and over use. I am on it all the time so I am never off. I think when a person is on an antibiotic and then off and then back on over and over again then I think the drug becomes less effective. With Levoquin I’d rather be on than off if it keeps me from getting sick again. That’s what I think. My ID doctor and pulmonologist put me on it. Irene5

REPLY
View MoreView Less
Please sign in or register to post a reply.