Primary Sclerosing Cholangitis (PSC)

@sandyblair, if you are comfortable to share, I have a couple of questions. Did you know that you had PSC before you needed a transplant?
and - I don't know how long ago the living organ transplant program began, but you must have been a pretty early one - Am I right or wrong about that?
Rosemary

You asked me about my dreams after transplant and I never answered it. I love life. I have done a lot of traveling throughout the world. Love my job, but I am going to retire next year to enjoy golfing and riding that big Harley of mine.

@jacinta, Wow! What an exciting future, and what fun awaits you!! (my brother and wife are Harley owners, so I can feel your excitement) My dream was to be able to go hiking again. I am happy to add that I am living my dream, too!

I look forward to hearing more from you as you move closer to the big day.
Rosemary

Absolutely! I had a Liver Transplant on September 10 , 2001 . My son , 23 years old, gave me 60% of his Liver! He hasn't had any health problems since then !
I have had a couple of Health issues , but God has blessed me 16 extra years and counting !
My surgery was at Mayo hospital Phoenix
And I assure you they are the best !

@sandyblair, You have an amazing story! But then, I think that all of us transplant recipients have amazing stories! I am of the opinion that by sharing our stories, that we are promoting organ donation. Thank you for sharing.
I enjoy hearing from you. And I look forward to hearing more from you.
Rosemary

Where do I go to read sandyblair’s transplany story as I have PSC ? I have my appointment next Monday at Mayo Clinic, Rochester

Next week, I go to Mayo Clinic in Rochester for a second evaluation for a partial Liver transplant. Like you I have PSC. I have it since 1990. Over the years, I have detoriated and was told I need a partial Liver transplant.

I have a Donor. I’m just a little concerned about the surgery. Where you glad you had it done ? How sick were you after the transplant.

Any words of wisdom ?

@jacinta, If you are referring to my reference to @sandyblair story, I'm my earlier reply, I am speaking of the information that she has shared on this PSC forum. You can scroll up to the beginning of this discussion and look for her entries. Or you can click on @sandyblair and read what she has shared with us.

Jacinta, you can direct your questions to anyone by clicking on the @name, as I have done above to alert @sandyblair that you have mentioned her.

It is good to hear from you. I hope that your visit goes well next week.
Rosemary

@sandyblair, I believe that the above post by @jacinta is meant for you.

You make me feel good about going to Mayo and accepting that I may need the surgery. Plus you had it done 2001, which means that surgeries have come along way since then. . . Meaning even more success.

Thank You