Living with metastic prostate cancer: Any positive stories to share?

Posted by olsente @olsente, Feb 17, 2023

Diagnosed with metastic prostrate cancer Nov17,2022, the cancer had already spread to my pelvic bone, lymph nodes , thoracic spine and throughout my bones fracturing 11 ribs, and to top it off 3 tumors in my head 1 of them behind my right eye causing vision problems. I started chemo Nov 28 ish , I’m on casodex and get the Lupron injection! My symptoms were back pain and I had seen multiple doctors through middle summer/fall! These doctors had me on physical therapy , accupuncture, 2 specialist stated I needed surgery on my back, they filled me with pain meds..not one doctor did series of blood test! Only test was an X-ray! My wife took me to mercy hospital Nov 11 in Buffalo because I was in so much pain and could barely walk. Within 4 hours in the ER the doctor told us they were quite sure I had cancer and would need to admit me run a lot of tests along with getting me healthy enough to go home.Sure shit I was admitted for 13 days,, then the day after my first chemo I ended up back in the hospital for 7 more days, I have had so many blood transfusion due to my counts being so low, a Foley catheter was put in me as well because I couldn’t urinate! I still have my catheter in and am doing my chemo! Does anyone have anything positive they can share with similarity!!! I am having my wife write this due to my vision

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bostonbruins | @bostonbruins | Feb 16 11:35am

Hello I'm dealing with prostate cancer and will have surgery in two days. It's in my pelvis and lower back. I had my surgery delay the first time and now I await my surgery this Tuesday. When I get up I have soreness in my pelvis and back. I sleep on my left side as it's hurts to lie on my right side. Here in Canada I'm covered by ohip which will cover my surgery plus I have great benefits . Hoping I can get rid of cancer as lm only 63 and have my family and my wife to help me thru it.

heavyphil | @heavyphil | 6 days ago

In reply to @bostonbruins "Hello I'm dealing with prostate cancer and will have surgery in two days. It's in my..." + (show)

Hey buddy, so sorry for your situation. What type of surgery are you having? I would think prostate removal is not indicated in your situation if it has already spread to your bones?
Have you been placed on ADT?

bostonbruins | @bostonbruins | 6 days ago

Having it removed and they will check around for any cancer.

vircet | @vircet | 6 days ago

In reply to @rxharleydude "I just cannot believe that you had to go through all of this misdiagnosis, treatment etc.,..." + (show)

How are you today?

I learned just last Friday, Feb 14, that I have prostate cancer (Gleason score 8, PSA 10) and I am waiting for a CT scan and a bone scan if the cancer has spread.

I am 68 and and wishes several more years to live and see my grand kids grow.

Reading your story of 12 years plus, living a pretty normal life gives me hope.

Thank you.

vircet | @vircet | 6 days ago

In reply to @bostonbruins "Hello I'm dealing with prostate cancer and will have surgery in two days. It's in my..." + (show)

Hi,
I am also from Ontario, and learned just last Friday, Feb 14 that I have an "unfavorable intermediate" prostate cancer. My urologist ordered a bone scan and a CT scan to determine if the cancer has already spread to other parts of my body.
My Gleason score is 8, and PSA is 10. I'm 68, are these numbers a lot worse than yours? If so, I am afraid that it's more likely my cancer has already spread and surgery might not help.
I wish you a good outcome from your surgery on Tuesday, Feb 18.