Connect
Prostate Cancer Warriors Support Group - Wednesdays nights
I belong to a support group that meets on Zoom every Wednesday night at 7pm EST. The moderator (Denis) does a great job of keeping track of everyone and he gives everyone a chance to talk. You can say as much or as little as you want. You will find a great deal of information, support and brotherhood in the meeting. You must copy/paste this link into the browser on your phone/PC. Simply clicking on the link usually doesn't work. https://us02web.zoom.us/j/82817487939?fbclid=IwAR1hMd3Vla81un2Kr0W6n4X-uwt4ntYq6eEdqTWhaz5lQyBtKSgAIhVKa7w_aem_AUekG1IP7LvVyxkziuIuth9TiZ9xy380J9mycH07Xc4S6NgenwdbT9ApRdWpnLMpeO8
Like
Helpful
HugInterested in more discussions like this? Go to the Prostate Cancer Support Group.
Connect
Why are you refusing to do ADT or similar?
I don’t want ADT either. Lucky I do not have pain yet. Cancer moved to my spine and a couple of ribs. Report was said to be minor at this time. My doc. Wants me to do Eligard after a dose of casodex (bicalutamide). I was on casodex for 2 months. My psa dropped from 21 to 6.5. Stopped casodex because I came down with heart failure. With that I quit casodex and now I have crt-d difilabrator. Meanwhile my psa went up to 25. I went back on casodex, hopefully to bring my psa way down. Too many bad stories on Eligard. It don’t cure or treat cancer. It is a palliative care, to relieve you of pain. But I do not have pain yet. I’m 83 next month, feel pretty good with all the meds my cardiologist gave me. I am also my wifes’ caregiver. Any opinions will be very welcome. My opinion is at 83 years of age I’d rather go with meds to control the pain when it comes.
When I was diagnosed in January 2023 with stage 4 PC at age 54 I was traumatized. My doctor quickly took action and everything is stable but I seriously needed some emotional support. In June 2023, I discovered a group of men who met weekly on Zoom to discuss our disease. Shortly thereafter a Facebook group was created by these men called "Prostate Cancer Warriors". I highly recommend that anybody who needs emotional and mental support join our group and attend a few weekly Wednesday night Zoom meetings. It is basically a group of 20-30 guys talking to other guys. No judgment, lots of support and useful information about various treatments and experiences that the guys have been through. Please share this information with anybody you know who has prostate cancer and needs some emotional support. This group changed my life and my outlook on my disease.
-
Like -
Helpful -
Hug
3 ReactionsHello Boys. I just discovered this forum and I hope to participate in the discussion in the weeks and months and hopefully for all of us, years ahead. I will be 69 Friday, was diagnosed in the summer of 2023 had my first ADT (Lupron) shot in January 2024, started 25 sessions of EBRT that February, followed by three Cyberknife sessions which ended in April of 2024. Had my last ADT shot in July and I'm just starting to feel a return to some semblance of my pre-treatment self. I am realistic enough to understand and accept that some things have permanently changed for me regarding intimacy with my girlfriend, but I would be interested in hearing how others are faring in this arena. My girlfriend was a godsend after my marriage of 30 years ended in 2019 and our sexual relationship was very satisfying until PC intervened.
She has been patient and understanding and we have taken it slow, but I want to believe that continued improvement is a reasonable possibility. Would welcome any suggestions..... Take care my Brothers......