Prostate Cancer Warriors Support Group - Wednesdays nights

Posted by ringmastr1 @ringmastr1, Jan 3 5:54pm

I belong to a support group that meets on Zoom every Wednesday night at 7pm EST. The moderator (Denis) does a great job of keeping track of everyone and he gives everyone a chance to talk. You can say as much or as little as you want. You will find a great deal of information, support and brotherhood in the meeting. You must copy/paste this link into the browser on your phone/PC. Simply clicking on the link usually doesn't work. https://us02web.zoom.us/j/82817487939?fbclid=IwAR1hMd3Vla81un2Kr0W6n4X-uwt4ntYq6eEdqTWhaz5lQyBtKSgAIhVKa7w_aem_AUekG1IP7LvVyxkziuIuth9TiZ9xy380J9mycH07Xc4S6NgenwdbT9ApRdWpnLMpeO8

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Thanks for the “heads up”

Is there a primary subtopic regarding different aspects of PCa discussed each week?

Can you provide what are the typical discussion topics, about PCa, that are normally discussed?

Thanks!

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There are no planned topics or sub topics. The moderator goes around the room and calls on each guy to talk about their current condition and treatment. You also have the opportunity to ask questions to the group about a possible treatment or side effect. There are usually about 25 guys in the meeting with various stages of prostate cancer. The guys have been through a variety of treatments, including the newest ones like Pluvicto, so it is rare that you will ask a question that somebody does not have the answer to. The people in the group are not doctors, but they can share their experiences with different treatments and options. You can then take that information back to your doctor, and have better discussions with them, There is a lot of support in this group and you will quickly feel like part of the brotherhood .

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@ringmastr1

There are no planned topics or sub topics. The moderator goes around the room and calls on each guy to talk about their current condition and treatment. You also have the opportunity to ask questions to the group about a possible treatment or side effect. There are usually about 25 guys in the meeting with various stages of prostate cancer. The guys have been through a variety of treatments, including the newest ones like Pluvicto, so it is rare that you will ask a question that somebody does not have the answer to. The people in the group are not doctors, but they can share their experiences with different treatments and options. You can then take that information back to your doctor, and have better discussions with them, There is a lot of support in this group and you will quickly feel like part of the brotherhood .

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Thank you

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I’m a 64 year old male with prostate cancer stage 4 that metastasize to my bones… My doctor wants me to do ADT and I refuse to go that route I have do 28 days of radiation and I’m starting Radiation for the cancer on my spine and ribs my PSA is 157 … Is there anyone else on this forum that have refused to do ADT besides myself??? Please respond Thank you Thomas

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I'm 55. Stage 4 with mets to my hip, lymph nodes, sacrum and L5. I had 5 rounds of radiation to stabilize my bone mets, but since the cancer it's in multiple places I am doing ADT to help protect my entire body. ADT has some rough side effects when it comes to sexuality, but my overall quality of life is still very similar to when I was diagnosed a year ago

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I was recently diagnosed with Prostate Cancer, Gleason 4+3=7. Do I need to register to join this Zoom meeting or just paste the link?

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Dear Mother Goose,
I'm in my late 60's. Jan. '21: PSA- 20, biopsy of prostate confirmed Gleason 7-8 High Risk to Very High Risk Prostate Cancer. Due to extra protrusions near bladder and retcum, I chose 25 EBRT, HIR, and 2-1/4 years on Lupron (ADT) over surgery. To date Jan. '24, No mets but pain in back, left knee, right shoulder and elbow, (who knows could be arthisis). Yes, ADT has made me a weakling and a unick (PSA 0.2), but my youngest is expecting her first child this Summer, I can still be part of my childrens' and grandchildrens' lives and perhaps it will ensure my wife won't be alone for many, many decades; God Willing maybe less than a decade (her family traditionally lives well into their 90's). We all have to weight priorities, research medical protocols and make our own decisions for what is best for us as an individual and as a family member. ADT, until something better comes along, is my protocol warts and all. I am content with my decision and hope it will extend my earthly lifespan. I wish you good counsel as you make your health decision and a long, happy life. God Bless you and yours.

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