Mayo Clinic Connect
has anyone had stereotactic body radiation therapy? my doctor has mentioned this treatment as one option available. I have not heard from anyone who has chosen this option.
if it’s not too personal; what were the side effects.
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My husband has a PSA test every 4 months and it is undetectable for 17 years
May I ask you what type of treatment is he taking.
He gets a shot every 6months of Lupron depot
Hello my husband has been using that therapy for amost 17 years and is still alive. He is a master on dealIng with the side effects and we both are happy that He has the ability to take this medicine FLOR
Has he been on Lupron for 17 years?
Was his prostate removed?
Hi @jerrymayo123, welcome to Connect. I noticed that you have several question for @flor that went unanswered. I've tagged her and hope she'll return to respond to you.
In the meantime, let's get to know you. Have you recently been diagnosed with prostate cancer? What treatments have you had or what decisions are you facing?
Has anyone been to the Utopia Wellness Center where they claim to cure cancer by holistic means and not radiation or chemotherapy?
Has anyone had Androgen Deprivation Therapy for treatment for prostate cancer and if so, what was your experience?
Did 18 months of Lupron from Jan 17-May 18, 6×90 day shots.
PSA dropped to
Hi @kujhawk1978, I think your message was cut off. This is because of a bug in the message system that cuts off after the less than symbol. I suspect you posted that your PSA dropped to less than … This is a known issue and we have a patch to fix it that will be deployed tonight or tomorrow.
Could you repost your message without using the less than symbol?
Did 18 months of Lupron from Jan 17-May 18, 6×90 days shots
PSA dropped to less than .1 and stayed there.
Side affects were:
Muscle and joint stiffness
Yes, testicle and penile shrinkage, as my urologist said, hey, we took you back to your pre-pubescent state…
Some statistics say 20% of men on ADT do not lose their libido, I was one of those
How did I counter those, well, the hot flashed were pretty much just endure, never ran the heater in the car, didn't swim my laps in the heated pool at the gym…dual climate control in my car was a godsend!
Exercise did help with the other two, I swam, went skiing, rode my bike, lifted weights, played basketball, hiked in the mountains, walked my dog, did yardwork…
Besides monitoring your PSA through lab tests, tell your urologist you want your testosterone checked each time you do PSA labs tests. Why, well, data says if your Testosterone is less than 20 and your PSA is less than .1, especially if they reach those levels quickly and stay there, it may signify a durable response and increased progression free and overall survival. If the testosterone does not go below 20 then you may want to speak with your urologist about adding an additional agent, think the term is combined androgen blockage (CAB).
Liked by Colleen Young, Connect Director
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