Bseibel
@bseibel
@bseibel
Posts: 3
Joined: Nov 02, 2012
Hi @gmack. My husband was diagnosed with metastatic colon cancer, mets to the liver. He received treatment at Mayo Clinic in Rochester in March using SBRT (stereotactic body radiation therapy). It was quite fascinating and intricate. He received 5 treatments within a two week timeframe. He tolerated it quite well as they were focusing on a tumor in the liver, with good results.
BS
bboxer
@bboxer
@bboxer
Posts: 16
Joined: Dec 12, 2016
Has anyone had Androgen Deprivation Therapy for treatment for prostate cancer and if so, what was your experience?
Philn
@philn
@philn
Posts: 8
Joined: Jul 20, 2017
@bboxer Has anyone had Androgen Deprivation Therapy for treatment for prostate cancer and if so, what was your experience?
Hello,
I received my first Lupron infection May 3, 2017 to lower my PSA number. It has in fact achieved that result, but my understanding
is that this is not a cure but only slows down the growth of metastatic cells that are present. As predicted the side effects of Lupon
are quite extensive and some have been difficult to live with. I hope this is of some help to you.
Philn
bboxer
@bboxer
@bboxer
Posts: 16
Joined: Dec 12, 2016
if it’s not too personal; what were the side effects.
bboxer
@bboxer
@bboxer
Posts: 16
Joined: Dec 12, 2016
@bseibel Hi @gmack. My husband was diagnosed with metastatic colon cancer, mets to the liver. He received treatment at Mayo Clinic in Rochester in March using SBRT (stereotactic body radiation therapy). It was quite fascinating and intricate. He received 5 treatments within a two week timeframe. He tolerated it quite well as they were focusing on a tumor in the liver, with good results.
BS
what is SBRT? How does it differ from standard radiation?
Philn
@philn
@philn
Posts: 8
Joined: Jul 20, 2017
Within 2 hours of the injection I experienced chronic headaches and joint stiffness. The headaches lasted for 2 weeks, the joint stiffness continues.
Then there were periods of insomnia , hot flashes, and cold sweats, weight gain in the waist to the point where I can only wear pants with an elastic
waist band. Also there have been periods of dizziness and confusion, and as many as 4 trips per night to the bathroom starting at 1:00 am and ending
at 5:00 am. All that I have mentioned are in fact predicted by the Doctors, nurses, and various web sites.
Philn
Bseibel
@bseibel
@bseibel
Posts: 3
Joined: Nov 02, 2012
@bboxer if it’s not too personal; what were the side effects.
The side effects included nausea about two hours after treatment. Other than that, just fatigue.
Bseibel
@bseibel
@bseibel
Posts: 3
Joined: Nov 02, 2012
@bseibel Hi @gmack. My husband was diagnosed with metastatic colon cancer, mets to the liver. He received treatment at Mayo Clinic in Rochester in March using SBRT (stereotactic body radiation therapy). It was quite fascinating and intricate. He received 5 treatments within a two week timeframe. He tolerated it quite well as they were focusing on a tumor in the liver, with good results.
BS
Stereotactic body radiation therapy (SBRT) delivers precise, high doses of radiation to a tumor. SBRT is a specialized technique used to treat tumors in the lung, liver and spine while minimizing damage to the surrounding normal, healthy tissues. It is more of a targeted treatment. We were told that if this procedure wasn’t successful, that SBRT would not be done a 2nd time on the same tumor, due to it’s precision. If it didn’t work the first time, it wouldn’t work the 2nd.
Bill Snyder
@6608
@6608
Posts: 3
Joined: Aug 10, 2017
I was recently diagnosed with prostrate cancer. My PSA was 24. I switched my primary care doctor to Mayo in April, 2017. I had a previous primary care doctor, for 9 years, who never did a PSA test. The 1st thing my Mayo doctor did was a PSA – 2x – then a prostrate biopsy that confirmed my cancer. I have chosen proton beam radiation treatment and have just had my 4th – scheduled for a total of 45. After a lot of research, I strongly recommend proton therapy as an excellent treatment option.
Liked by Colleen Young, Connect Director
Philn
@philn
@philn
Posts: 8
Joined: Jul 20, 2017
@6608 I was recently diagnosed with prostrate cancer. My PSA was 24. I switched my primary care doctor to Mayo in April, 2017. I had a previous primary care doctor, for 9 years, who never did a PSA test. The 1st thing my Mayo doctor did was a PSA – 2x – then a prostrate biopsy that confirmed my cancer. I have chosen proton beam radiation treatment and have just had my 4th – scheduled for a total of 45. After a lot of research, I strongly recommend proton therapy as an excellent treatment option.
Hello,
My PSA number was 4, a biopsy confirmed my cancer as well. I chose a method called external beam radiation for 45
appointments, and my prostate tested negative for cancer. Unfortunately, in my case, one year later my PSA number
reached 17. Later scanning procedures revealed metastatic cells were present in the lymph system. I am now
being treated with harmone therapy.
Bill Snyder
@6608
@6608
Posts: 3
Joined: Aug 10, 2017
@6608 I was recently diagnosed with prostrate cancer. My PSA was 24. I switched my primary care doctor to Mayo in April, 2017. I had a previous primary care doctor, for 9 years, who never did a PSA test. The 1st thing my Mayo doctor did was a PSA – 2x – then a prostrate biopsy that confirmed my cancer. I have chosen proton beam radiation treatment and have just had my 4th – scheduled for a total of 45. After a lot of research, I strongly recommend proton therapy as an excellent treatment option.
Very sorry to hear about the return of the cancer. How often was your PSA tested after you had tested negative for cancer?
Philn
@philn
@philn
Posts: 8
Joined: Jul 20, 2017
Every 6 months for 5 years after treatment. The PSA number was acceptable for approximately one year when it began to double every 3 months for 9 months. The theory is that before radiation began the cancer metastasized to the lymph system where it was only detectable by a Pet choline scan.
flor
@flor
@flor
Posts: 76
Joined: Mar 22, 2016
@bboxer Has anyone had Androgen Deprivation Therapy for treatment for prostate cancer and if so, what was your experience?
Hello my husband has been using that therapy for amost 17 years and is still alive. He is a master on dealIng with the side effects and we both are happy that He has the ability to take this medicine FLOR
flor
@flor
@flor
Posts: 76
Joined: Mar 22, 2016
@bboxer if it’s not too personal; what were the side effects.
No sex ,hot flashes, fatigue,
@predictable
Hi @gmack. The therapy is new to me, but it sounds good. Check it out at https://www.radiologyinfo.org/en/info.cfm?pg=stereotactic.
My bladder and prostate surgery were both invasive and old fashioned TURP (transurethral resection of the prostate) and TURB (transurethral resection of the bladder). Would have been great to avoid the surgery! So far, after 8 years, I’m clean!
Martin