ProNerve6

I took Alpha Lipoic Acid. I had a reaction to it. My whole body swelled up and I had problems urinating. I quit taking it and was better. I contacted Dr Oaklander in Boston and she told me it’s been proven to make things worse.

There are so many companies out there offering "miracle cures" for virtually every condition. 99% are scams, looking to take your money. Remeember the old saying, "If it seems too good to be true, it probably isn't". Unfortunately, those of us in severe pain will tend to grasp at any new straw floating by that looks like a potential help. It's too bad there are so many hucksters out there looking to prey upon our pain.

I agree with @heisenberg34, I think there are too many and new ones keep popping up everyday. That's why we need to do our own research. Here are a few links that I have used in the past to evaluate treatments.

Quazar's guidance about avoiding scams and snake oil cures
-- https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/

FDA's Health Fraud Page
-- https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm

NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions
-- https://www.nccih.nih.gov/health/pain

I agree 100%. I learned several years ago that you have to be your own best advocate. This was after two orthopedic surgeons told me point blank after briefly scanning my records and MRI, "There's nothing else that can be done. Just learn to live with it". If I had listened to them, I would likely be in a nursing home or dead. Get second, even third, opinions. Doctors are not super heroes for the most part.

Wow you hit the nail on the head, l couldn’t have said it any better. I’ve posted this comment before (They can fly a man to the moon, perform a heart transplant, you would think they could find a cure to help us with this dreadful disease it can affect you in so many different ways, it’s like no other medical problem. And the real SAD thing is, yes, all the scammers out there, including some people in the medical field. I’ve been around for 90 years and I’ve seen a lot and heard a lot to me it all boils down to the (ALMIGHTY DOLLAR) May GOD Bless you all and keep you safe!🙏🙏🙏

Please do that!! I would love to hear what everyone has tried that has worked/has not helped. Does it all depend solely on what type of neuropathy we have i.e. I did the spinal cord implant from two different companies and neither helped at all; but, haven't some patients had relief from the implant?

Would you share with us what helped you???

90! Man, that's great. How active are you. I am only 76, and feel like 100. My pain doc only refills my pain pump or adjusts it upwards. I have asked him to look at some alternative avenues since the pain pump isn't doing anything (and has never helped in over a year since implantation). I ask him to reach out to his feloow docs to see if anyone out there has any thoughts. I think these guys have such a high opinion of themselves that they think that only they have all the answers. I've only had one doc, all the way back in 2016 , who actually reached out to others.