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Prolonged confusional state after series of seizures
Good morning everyone,
Apparently last month I had a series of seizures. I still don't know how many I had. My friend said she had been trying to contact me for a couple days and decided to come over. Fortunately my front door was unlocked and I was found in my recliner seizing. I knew I was in the hospital once but I'm being told I was an inpatient there twice. I know amnesia is common in seizure patients but I'm still so confused. I get up to go into the kitchen and I ended up standing in the shower which is in the opposite end of the house. I still knew I wanted to go to the kitchen but I couldn't find it. It's like when I come out of the post ictal phase and even though I'm on the floor & my body aches from the contractions and my tongue and cheeks are all chewed to pieces I have no idea I had a seizure until I'm told. It's as though the post ictal confusion in coming and going. In my 58 years of seizures this has never happened before. And I have not known anyone that has experienced this prolonged confsional state.
Has anyone here experienced anything like what I'm trying to explain?
Thanks,
Jake
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Hi Jake - @jakedduck1
I am so sorry to hear you had such experience, recently.
I, in 2022 had a series of seizures because of the J&J Covid vaccine and this lasted 10 days in total. During those days, especially at the beginning, I was quite confused with the 13 complex partial seizures a day I had. I understand you had tonic-clonic seizures which are even stronger and leaves us more confused.
Did you have any changes in your medication recently and/or any changes in your life style?
Praying for you to get better and over all that soon!
Hugs,
Chris (@santosha)
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2 Reactions@santosha
Yes, I ran out of one of my meds. The pharmacy didn't have the brand name in stock.
I wasn't functioning on all cylinders at that time either. For whatever reason I never thought to go to another pharmacy or get some meds from my brother. I know I'm not the brightest bulb in the chandelier, but even so I'm not normally this irresponsible. I know how important my medicine is. I have chanced going without my medicine for a day before, but even that is risky. I would increase my Phenobarbital but this time no luck. Last night I found out these started in the middle of May.
I'm curious if I was in Status Epilepticus. Maybe they put me in an induced coma. I only remember a few days in the hospital but apparently it was much longer and more than once. I have no memory of the other hospitalization.
I’m hoping to get some medical records today and talk to some friends more in the know so I can somewhat reconstruct what happened.
Thanks for your message Chris.
Take care,
Jake
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Hi Jake,
I am so sorry to hear all that. I hope very soon you will have a better picture of what happened to you exactly. If I can be of any help, please do not hesitate to reach me.
Crossing my fingers for you!!!
Chris (@santosha)
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2 ReactionsHi @jakedduck1
How have you been? Did you already have a better picture of what has happened?
Looking forward to hearing from you!
Chris (@santosha)