Prolia treatment for osteoporosis: What is your experience?

You can go on Prolia to maintain the bone density achieved while on Tymlos.

@lioness. Thanks, Linda. Up until this injury I was doing all of that. I was using 10 pound weights and about to increase that. I did start taking calcium with vitamin D too. I have been doing a lot of research and I have read that although swimming and walking are great for overall conditioning and cardio they don’t help bone strength much at all!

At this point I think Tymlos may be the best drug for me but I of course will be discussing that with the doctor when I get to see her which probably won’t be until December. I asked to be on the waiting list, and I will be, but the person I spoke to told me there’s a very long waiting list. I am sure I could see someone sooner if I chose to go to a doctor up here but this whole thing has been the last straw in my losing confidence in most of the doctors up here, so I will see a rheumatologist at MGH. It is very upsetting to think that my PCP, who is highly regarded by other doctors, let this fall through the cracks.

I do think I will look into the bone broth you mentioned. I am sure that it can’t be something that my transplant team would say I should not use but I will, as always, check with them first. Some of the restrictions are very surprising.
JK

@artscaping Thank you so much, Chris. This is great information. I too will be playing catch-up. As I have indicated in a number of posts, I am absolutely fuming at my PCP that he dropped this ball. It sounds as if Tymlos may be the best option for me too although I hate the idea of giving myself injections. UGH. Those are the only two that build bone, right? My DEXA report says I am at high risk for a fracture.
That is a good question, what to do when the 18 months is up. I will do more research on Tymlos. As I commented above, I called the rheumatologist I want to see today and she is now scheduling in December. I asked to be put on the waitlist and was told that I would be, but that it is a very long waitlist. 🙁 Have you asked your doctor what will happen after the 18 months? Are you seeing just your PCP for this or are you seeing a specialist too?
Where you mention daily exercises you mention walking. Walking is great for cardio and general conditioning but I just read that in a study done with a test group that did not walk, and a group that did walk daily, there was no difference in bone strength much to the surprise of the researchers. I also saw somewhere that high impact exercises are good, but if your bones are weak should you really be doing high impact? I am thinking I will do some Zumba, that's pretty good exercise, burns a lot of calories and I think will be good for bone strengthening. I did it a long time ago, before having knee replacements, and a lot of women I know at my health club do it. I enjoy the pool and that too is good for some things but I doubt it does much for bones and right now that is a huge consideration for me.
I bought the ebook, "Strong Women, Strong Bones" by Miriam Nelson. I haven't read far into it yet but I think it will be good. My sister has osteopenia and her doctor recommended it. The same author has also written "Strong Women Stay Young" which too delves into bone-building but is not as specialized as the former.

@llwortman I can certainly understand your reluctance to take the drugs you mention. You did not mention Tymlos or Forteo. I believe those are different than the drugs you mention. Would they possibly be an option if you got to the point that Chris and I are at, needing to rebuild bone?
JK

There is Forteo, Tymlos and one other according to my endocrinologist but unfortunately, I can’t remember the name of it....perhaps someone here can. I fractured my foot last winter and things are still not good (fractures are healed now-I am on Tymlos now-but they discovered some pretty extensive arthritis also). I wish you the best in finding results that work well for you so fractures do not enter your life.....they are challenging.

Thanks @migizii Discovering that I have severe osteoporosis was actually due to a trochanteric femur fracture. I called my PCP and asked if I was due for a bone density scan. Turned out I was very overdue since my last scan was in 01.2014 and at that point I had osteopenia. I now know that I should have been getting scanned at least every two years after that. For me this is especially true since I have three medications that can negatively affect bones, plus I lost a lot of weight.

You bring something up that I wondered about. If you have osteoporosis does it take longer to heal? I was told this injury usually takes about three months but I am past two months and still in a lot of pain. I wonder if I will ever be back to normal.

Also, my PCP told me to see a rheumatologist but apparently some people see endocrinologists. Which is better for osteoporosis? I already have an endocrinologist whom I like a lot and is very highly regarded. I did check his clinical interests and there was no mention of osteoporosis.

I sure wish I had known I should have been having scans every two years, I would have taken the initiative to make sure that happened, way back then, not after fracturing something.
JK

@migizil, @contentandwell, Here is a link that classifies and compares Forteo and Tymlos. I haven't found a third medication in either of these two categories of bone-building medications. Hopefully, you can survive all the ads. Do those Ad blockers really work?
https://www.yourhealthremedy.com/health-tips/abaloparatide-vs-teriparatide/
Have a lovely, peaceful evening. Chris

Thanks @migizii Discovering that I have severe osteoporosis was actually due to a trochanteric femur fracture. I called my PCP and asked if I was due for a bone density scan. Turned out I was very overdue since my last scan was in 01.2014 and at that point I had osteopenia. I now know that I should have been getting scanned at least every two years after that. For me this is especially true since I have three medications that can negatively affect bones, plus I lost a lot of weight.

You bring something up that I wondered about. If you have osteoporosis does it take longer to heal? I was told this injury usually takes about three months but I am past two months and still in a lot of pain. I wonder if I will ever be back to normal.

Also, my PCP told me to see a rheumatologist but apparently some people see endocrinologists. Which is better for osteoporosis? I already have an endocrinologist whom I like a lot and is very highly regarded. I did check his clinical interests and there was no mention of osteoporosis.

I sure wish I had known I should have been having scans every two years, I would have taken the initiative to make sure that happened, way back then, not after fracturing something.
JK

Thanks @migizii Discovering that I have severe osteoporosis was actually due to a trochanteric femur fracture. I called my PCP and asked if I was due for a bone density scan. Turned out I was very overdue since my last scan was in 01.2014 and at that point I had osteopenia. I now know that I should have been getting scanned at least every two years after that. For me this is especially true since I have three medications that can negatively affect bones, plus I lost a lot of weight.

You bring something up that I wondered about. If you have osteoporosis does it take longer to heal? I was told this injury usually takes about three months but I am past two months and still in a lot of pain. I wonder if I will ever be back to normal.

Also, my PCP told me to see a rheumatologist but apparently some people see endocrinologists. Which is better for osteoporosis? I already have an endocrinologist whom I like a lot and is very highly regarded. I did check his clinical interests and there was no mention of osteoporosis.

I sure wish I had known I should have been having scans every two years, I would have taken the initiative to make sure that happened, way back then, not after fracturing something.
JK