Progressive supranuclear palsy

Posted by pattywelch @pattywelch, Sep 13, 2018

I have just been told about this as a possible diagnosis instead of Parkinson’s Disease. Can anyone give me any information regarding this diagnosis? I have red the articles, but nothing is very helpful on what I can expect.

I had a change in my insurance so I was unable to keep the appt. I am working on this problem.

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@pattywelch

I had a change in my insurance so I was unable to keep the appt. I am working on this problem.

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@pattywelch, that must be frustrating. Please keep us posted.

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Anyone have been diagnosed with this. Are there any Clinical Trials for this

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Hi @2109 you may have noticed I moved you post to this existing discussion on progressive supranuclear palsy so that you can see what tohers have said about this condition. Simply click VIEW & REPLY in your email notification to get to your post.

Here is one clinical trial for this condition:

Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL) – https://www.mayo.edu/research/clinical-trials/cls-20146820

In addition if you go to this link you can see the other clinical trials that are ongoing or completed at this time: https://clinicaltrials.gov/ct2/results?cond=Supranuclear+Palsy%2C+Progressive&term=&cntry=&state=&city=&dist=

@2109, were you or someone close to you recently diagnosed with this condition?

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