Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

I want the thank secglc2 for the comments that were made. Like you I placed my trust in the ‘Man upstairs’ and how He was truly my helped me through this part of my life.
When I was first diagnosed I was placed into ICU. I do not remember any of this part of my hospital experience but what my wife states, I was not in a coma but I was incognito for the first week that I was in the hospital. During my first week I was pulling out IV lines and did not understand anything that was stated to me and I did not make any sense when I tried to talk. I was restrained during this time. Thank God I do not remember any of this time. Fortunately I do not remember any of this.
I have had to relearn how to write and also to use my computer. As we came down the the end, a MRI was done. The Hope was that it would show a negative (or normal) result and it was not normal. Thought at this time, with me being older (77), was not necessarily bad but May mean future issues. Well, in March of 2023, it will be 7 years. since I was diagnosed.
As I mentioned earlier, the ‘Man upstairs’ has been with me all along. The truth is this that was with me during the good times as well as the times when you do not know where He is. He is with you more when you don’t see Him, or when you don’t feel Him. Sometimes those are the times He’s there when it’s the most difficult times of your life.

I want the thank secglc2 for the comments that were made. Like you I placed my trust in the ‘Man upstairs’ and how He was truly my helped me through this part of my life.
When I was first diagnosed I was placed into ICU. I do not remember any of this part of my hospital experience but what my wife states, I was not in a coma but I was incognito for the first week that I was in the hospital. During my first week I was pulling out IV lines and did not understand anything that was stated to me and I did not make any sense when I tried to talk. I was restrained during this time. Thank God I do not remember any of this time. Fortunately I do not remember any of this.
I have had to relearn how to write and also to use my computer. As we came down the the end, a MRI was done. The Hope was that it would show a negative (or normal) result and it was not normal. Thought at this time, with me being older (77), was not necessarily bad but May mean future issues. Well, in March of 2023, it will be 7 years. since I was diagnosed.
As I mentioned earlier, the ‘Man upstairs’ has been with me all along. The truth is this that was with me during the good times as well as the times when you do not know where He is. He is with you more when you don’t see Him, or when you don’t feel Him. Sometimes those are the times He’s there when it’s the most difficult times of your life.

My partner of 15 years was recently diagnosed with PNS Lymphoma. In spite of being 84 years old, his neurosurgeon proposed a craniotomy and removal of the tumor in his left temporal lobe; otherwise, he said that my partner’s quality of life would be jeopardized. He said that he was in general good health so surgery was recommended. About a month before diagnosis, his symptoms were nausea, loss of balance, forgetfulness (he couldn’t figure out the functions of his cellphone, would forget the codes to his security alarm system and the garage, had difficulty with simple math) and not being able to articulate what he wanted to say. He went for surgery on December 1 and now is suffering from extreme confusion and delirium. The prognosis is very grim and the hospital medical team are now proposing moving him to palliative care. Needless to say, we, his family, are devastated (an understatement). He was someone, who in his 80’s golfed twice a week, fished, hiked, traveled extensively and was living an active, beautiful life. The whole thing happened so suddenly and quickly and his quick deterioration after his surgery was totally heartbreaking and overwhelming.

I was diagnosed with Primary CNS Lymphoma iin March 2016, almost 7 years ago. I was in and out of hospital 80 days. But by the middle of September I was done. I am This coming week I will be 77. I had the high levels methotrexate but did not get the auto lymphocyte cells treatment. I was on the older group to get this disease and, as of now, I have SURVIVED! The only i would like to ask those that have been down this road is, have you noticed how you may think your personality has changed?

I was diagnosed with Primary CNS Lymphoma iin March 2016, almost 7 years ago. I was in and out of hospital 80 days. But by the middle of September I was done. I am This coming week I will be 77. I had the high levels methotrexate but did not get the auto lymphocyte cells treatment. I was on the older group to get this disease and, as of now, I have SURVIVED! The only i would like to ask those that have been down this road is, have you noticed how you may think your personality has changed?

Ann, I don’t know if it’s appropriate to hand out your number to someone on this forum or not. This was my exact diagnosis with added I formation...Large B cell CNS Lymphoma, I lost motor skills and cognitive skills. Immediately after my brain biopsy, I couldn’t even hold a sandwich or use utensils. I would love to hear your story and share mine. I will tell you that mine has a happy ending. Two more clean MRIs, and I’ll be considered cured. If his treatment is the same as mine, he’s got a tough year ahead of him. If you would like to talk,I’m very open to it. Let me know, and I can give you my contact information. It’s really an overwhelming time.